A Lupus story

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After ten years of wrong diagnosis, with the help of a private doctor, I could finally put a name to what i have been suffering for real. Here is the links of the struggle of most who suffer from rare medical conditions;

https://anshikasawaram.wordpress.com/2014/09/30/medical-institutions-and-services-which-cost-you-your-life/

https://www.facebook.com/photo.php?fbid=10203690198246102&set=a.1503231591375.2064867.1551803088&type=3&theater

https://www.facebook.com/photo.php?fbid=10205680741448438&set=a.1503231591375.2064867.1551803088&type=3&theater

https://www.facebook.com/photo.php?fbid=10205905312062563&set=a.1503231591375.2064867.1551803088&type=3&theater

https://www.facebook.com/photo.php?fbid=10205996323577794&set=a.1503231591375.2064867.1551803088&type=3&theater

 

In this quest, I vowed to learn and research about Transverse myelitis and Systemic Lupus Erythematosus to better help those sailing the same ship as me.

After I publicly came out about my medical conditions,( https://www.facebook.com/photo.php?fbid=10203615819506680&set=a.1503231591375.2064867.1551803088&type=3&theater ), I am more often contacted by people who feel and live the same on facebook. Most of the times, I have benefited from lending an ear and a hand as this is how I achieve my goal, that of building an awareness community about invisible diseases.

I am inviting and requesting Mauritians who are patients, have a family members, friends or acquaintances who suffer from chronic and rare diseases to please answer this survey on http://www.diseasemaps.org/en/. I will be so grateful and thankful , as this data will be of great help for coming projects.

You can choose to answer anonymously and get in touch with me via facebook (Anshika Sawaram), about anything related to the same issue.

Thank you and take care.