A Lynch Syndrome interview .

Cathy's interview


How did all start?

Our family was tested for Lynch Syndrome after my 27 year old daughter was diagnosed with colon cancer.

Do you already have a diagnosis? How long did it take you to get it?

Same time...2006

For what medical specialties have you been treated? What has been the most useful specialty for your?

Lynch Syndrome Muir-Torre

What has been the most useful thing for you so far?

Knowing what testing I need.

What have been your biggest difficulties?

Being bounced around a few times at the major cancer center heading the High Risk Clinic.

How has your social and family environment reacted? Have your social or family relationships changed?

It's been difficult as both my daughters tested positive.

What things have you stopped doing?

Taking life for granted.

What do you think about the future?

Promising as long as I keep up with the recommended testing.

So far, which years have been the best years in your life? What have you done during them?

Having my grandchildren and enjoying them but praying they do not have Lynch Syndrome.

If you had to describe your life in a sentence, what would it be?

That would be impossible to sum up my life in one sentence.

Finally, what advice would you give to a person in a similar situation?

Learn all you can about Lynch Syndrome as must medical professionals today sadly do not know a lot about Lynch Syndrome.

Interview Lynch Syndrome

Sep 18, 2017

By: Cathy

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