- Nail-patella syndrome
- Interviews
Teganm7's interview
How did all start?
Birth Obviously haha
Do you already have a diagnosis? How long did it take you to get it?
Yes took 22 years...this year ti officially get it on paper but knew I had it since birth from the missing thum nails. Deformed knee caps. Posture etc. All like mum
For what medical specialties have you been treated? What has been the most useful specialty for your?
I have not seen any to be honest I will be seeing a physiotherapist soon. Up until now ive just sucked it up. Gone to a massuse to monthly.
(not including mental health stuff btw)
What has been the most useful thing for you so far?
Heat packs!!
What have been your biggest difficulties?
Finding a job. No one wants to employ someone with a funny posture and to be honest i doubt i could work but i need a job
How has your social and family environment reacted? Have your social or family relationships changed?
Because of my little weight Im often brought up on that. Its frustrating. And accused by strangers of drugs. But they dont know my story. Thats about it
What things have you stopped doing?
Driving manual.
What do you think about the future?
Hopefully getting a job
So far, which years have been the best years in your life? What have you done during them?
This year. I got married to someone who loves me for me
What would you like to do if you didn’t have your condition?
Work!
If you had to describe your life in a sentence, what would it be?
Painful
Finally, what advice would you give to a person in a similar situation?
I dont wish this upon anyone and Im so sorry if you go throuhh it to. Massages a great. Heat packs are great
