Story about Oral-Facial-Digital Syndrome .

My OFD

May 21, 2017


I am a 27 year old female who was born with a rare syndrome known as OFD-1 or Oral Facial Digital Syndrome Type 1. It affects my teeth, tongue, nose, fingers, toes, and scalp. I have severe TMJ. My jaws are misaligned and its very painful when I talk or eat. I have suffered serious depression my entire life but still strive to better my situation.  I have nasoseptal defect, bilateral temporomandibular joint disorder, anterior disk dislocation, maxillary hypopladia, AP and transverse discrepancy, and multiple misding teeth. I am needing to have orthognathic/Maxillofacial surgery to correct my jaw misalignment and various other facial defects.

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