Story about Pierre Robin Syndrome .

Esme

Aug 14, 2017


My daughter was born 1/12/2010 midwife led birthing center flat and unresponsive. She required cpr and quickly and immediate transfer to the neonatal intensive care unit. She was then diagnosed with Pierre robin yndrome, microcargnathia and horse shoe kidneys.

she stayed in scubu for 21 days and came home with an no feeding tube and an npa in her nostril to help with breathing and to stop her small younger from flopping back and chocking.

she had a full cleft palate wich was repaired at 6 months and after that she thrived.

 

shes now 2 and a half and the only concern is a mild speech delay. She's a little petite but an amazing character. 

 

The cleft team at morriston hospital were anazing through out and the CLAPPA community are there every step of the way. 

 

Im in awe of how strong she's been in her little life alread.

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