Often feels dizzy/light headed and has headaches/stiff neck
Botox injections in the forearm to combat rigidity in the hand
Being excepted into the clinical trial
Seeing people be opening up on what I have
no communication
Alguns sintomas diferenciadores foram muito importantes no diagnóstico
Sharing experiences and knowledge
My Friends
Having my family taking care of me and supporting me.
Exercise
Really think about the patient having the peg
Conntacting early on in thr late stage
staying positive
The Facebook Group "Corticobasal Degeneration: find a cure, support for family & caregivers"
Realize that 'independence' can't be the goal. The goal has got to be to do as much as you can for as long as you can with as much help as you need. It's the only goal anyone with PSP and their families/caregivers can achieve!
Keeping my mind busy.
Scopolamine patch has helped with the secretions.
doctor
Meine kleine Pension mit meinen lieben Gäste, das bedeutet Abwechslung und Freude
palliative vare being introduced near the end and understanding an from other health care professionals when things were getting bad
Loving care
physical therapy
television
Wife, friends
CurePSP an international non-profit organization- what helps the most is participating in physical therapy and speech and language therapy
Support of family and friends
Exercise and massage
i am watchng what i eat. notghing drastic,just good food.
Sleeping with a heating blanket
Ongoing exercise and physical therapy kept him active and more flexible as his joints stiffened.
Albuterol in nebulizer has helped with some of choking on food.
Speech Pathologist might help someone communicate longer
Shes had it a year, and she can no longer pronounce words clearly
Friends who support me
Since a few months we've help of an au-pair
Tratamiento y seguimiento
su forma de ser
Palliative Care
Also diagnosed with Dementia Associated with PSP
Physical therapy (leg exercises, esp) have improved balance and talking
All the support groups
Moving here me to a more relaxed country community, out of the city busy-ness.
CBD helps sleep
Ongentys ajudou bastante durante algum tempo