- Relapsing Polychondritis
- Interviews
Tmrcarlson's interview
How did all start?
With my ear looking and acting weird no Dr knew what was happening. Then enormous pain through out my body. Doctors though I was seeking pain meds. Then a Dr Briscoe ENT was a referral knew right away it was RP. Then meds started they suck . Enbrel work but insurance shot it down. It seems to work for everyone. To get pain management in Texas is pretty much a no. For insurance and doctors. So my life is hell!!!
Do you already have a diagnosis? How long did it take you to get it?
7 years to figure out. And get insurance.
For what medical specialties have you been treated? What has been the most useful specialty for your?
RA doctor none so far
What has been the most useful thing for you so far?
Nothing
What have been your biggest difficulties?
Pain in joints and feeling so sick.
How has your social and family environment reacted? Have your social or family relationships changed?
Nobody cares. I don't leave the house because I can't walk or do things without pain.
What things have you stopped doing?
Everything it's depressing
What do you think about the future?
I will die in a few years. And nobody from the medical world cares
So far, which years have been the best years in your life? What have you done during them?
All before 2017 I did everything.
What would you like to do if you didn’t have your condition?
Everything anything I want
If you had to describe your life in a sentence, what would it be?
Lonely
Finally, what advice would you give to a person in a similar situation?
Get great insurance and pain management. A doctor that cares
