- Retinitis pigmentosa
- Interviews
Ziqgi's interview
How did all start?
I went for an eye test and was referred to a specialist. After seeing the specialist i was told that i am already legally blind.
Do you already have a diagnosis? How long did it take you to get it?
Yes, about three weeks
For what medical specialties have you been treated? What has been the most useful specialty for your?
None there is no treatment
What has been the most useful thing for you so far?
My Orcam device
What have been your biggest difficulties?
Not being able to drive any more
How has your social and family environment reacted? Have your social or family relationships changed?
Yes, friends have disappeared.
What things have you stopped doing?
Driving, shopping alone, working slower, travelling for projects.
What do you think about the future?
It is pretty grim
So far, which years have been the best years in your life? What have you done during them?
Before i knew i was going blind. I lived with passion and hunger to do it all and never slow down.
What would you like to do if you didn’t have your condition?
Travel the world alone.
If you had to describe your life in a sentence, what would it be?
Completely dependant on people around me
Finally, what advice would you give to a person in a similar situation?
Let it go..
