A Sarcoidosis interview .

Elisabeta's interview


How did all start?

I got a flu in Aprilie 2017. I take a radiography and my lungs were in a very bad shape. I was in a small town hospital and doctors didn t have a sure diagnosis. "TBC, carcinom, sarcoma, sarcoidosis..."i wasn t feeling bad or ill, i did not couch at all. So they did another radiography..all the same.and i went to a private dr.in Cluj Napoca. Dr Sosa Ioana, a very smart doctor who started to investigate. CT, blood analisis .but she is working at the children hospital and she sent me to another doctor dr. Parau Adriana for bronhoscopy and biopsy.in the end one blood analisys was concludent angiotensin convertaza, was high, 113.so it seems that i have sarcoidosis.but it is a Little atipic because the lung injuries are not just in mediastin but all the lungs are affected.

Do you already have a diagnosis? How long did it take you to get it?

Yes. 3 months

For what medical specialties have you been treated? What has been the most useful specialty for your?

Pneumologist.

What has been the most useful thing for you so far?

Complete blood analyzes and radiography.

What have been your biggest difficulties?

To recive some allege diagnoses.

How has your social and family environment reacted? Have your social or family relationships changed?

No. Nothing changed

What things have you stopped doing?

Sport. Eating whit salt.

What do you think about the future?

Continue whit my treatment, and hope i not Developer fibrosis.

So far, which years have been the best years in your life? What have you done during them?

I donat have a best year. I have a normal happy life

What would you like to do if you didn’t have your condition?

Eat a bunch of salt.

If you had to describe your life in a sentence, what would it be?

Just me, normal,happy enjoing life.

Finally, what advice would you give to a person in a similar situation?

Do not give up.search for a good doctor, get informed, live your life. Sarcoidosis is a long round partener, you will get used to live whit it.


Oct 19, 2017

By: Elisabeta

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