Story about Scleroderma .

My daughter is 8 years old which systemic sclerosis.

Sep 19, 2016


MY DAUGHTER IS 8 YEARS OLD WHICH UNFORTUNATELY SUFFERS FROM THIS VERY PAINFUL DISEASE , AND THAT IS CURRENTLY CAUSING SOME LIMITATIONS ON ARMS , KNEES, AND HIS LUNG CAPACITY, BUT ABOVE ALL FINGERS ARE MOST AFFECTED BY THE SCLERODACTYLY BY EXCESS COLLAGEN .

CURRENTLY TAKING METHOTREXATE , PENICILLAMINE , NIFEDINO , FOLIC ACID , CALCITRIOL , TACROLIMUS , VASELINE , PHOTOTHERAPY U.V.A SESSIONS 3 TIMES A WEEK , HYDROTHERAPY , PHYSICAL THERAPY , SPEECH THERAPY AND OCCUPATIONAL THERAPY.

I WOULD APPRECIATE ANY HELP IN TERMS OF INFORMATION ABOUT TRATAMINETOS , HEALING , OR OTHERS, THANK YOU.

 

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