Story about Von Hippel-Lindau Disease .

Vhl

May 17, 2017


My husband was diagnosed in 2004 with vhl has had double adreanalectomy kidney spine brain op and loss his sight due to vhl... 3 children also carry this gene and have had several operations and there also grandchildren as well 

Know someone who should read this story? Share it

0 comments

Login or register to leave a comment


Von Hippel-Lindau Disease advice

Which advice would you give to someone who has just been diagnosed wit...

Von Hippel-Lindau Disease diagnosis

How is Von Hippel-Lindau Disease diagnosed?

Von Hippel-Lindau Disease diet

Von Hippel-Lindau Disease diet. Is there a diet which improves the qua...

Do I have Von Hippel-Lindau Disease?

How do I know if I have Von Hippel-Lindau Disease?

What is Von Hippel-Lindau Disease

What is Von Hippel-Lindau Disease

Latest progress of Von Hippel-Lindau Disease

What are the latest advances in Von Hippel-Lindau Disease?

Is Von Hippel-Lindau Disease hereditary?

Is Von Hippel-Lindau Disease hereditary?

Von Hippel-Lindau Disease cure

Does Von Hippel-Lindau Disease have a cure?