the long road to diagnosis
Dec 2, 2
Error
spring 2014 sudden weight loss (2 stone) anaemic night sweats waekness;
doctors went down gastric route until heart started to fail: superb consultant asked for tests in jan 15;
even then had to spend a few months learning i had kidney cancer.
in march 15 was told this was untreatable as too weak.
Then after a year April 2015 had blood tests for heamatology and bone marrow biopsey showed WM.
Still very weak but started on Rituximab but heart attack, possibly from low HB, stopped treatment. Then Pneumonia from imunotherapy and hospital stay!
September 2015 told nothing could be done but wait to die; until saw specialist in WM, am now hoping for more treatment...
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