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Living with Acanthamoeba keratitis. How to live with Acanthamoeba keratitis?

Can you be happy living with Acanthamoeba keratitis? What do you have to do to be happy with Acanthamoeba keratitis? Living with Acanthamoeba keratitis can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with Acanthamoeba keratitis

Living with Acanthamoeba keratitis

Living with Acanthamoeba Keratitis


Acanthamoeba keratitis is a rare but serious eye infection caused by a microscopic organism called Acanthamoeba. It primarily affects the cornea, the clear front surface of the eye, and can lead to severe pain, redness, blurred vision, and even vision loss if left untreated. Living with Acanthamoeba keratitis can be challenging, but with proper care and management, it is possible to minimize the impact on your daily life.



1. Seek Immediate Medical Attention


If you suspect you have Acanthamoeba keratitis or experience any symptoms such as eye pain, redness, sensitivity to light, or blurred vision, it is crucial to seek immediate medical attention. Contact an ophthalmologist or eye specialist who can diagnose and treat the infection appropriately. Early detection and treatment are essential to prevent further complications.



2. Follow the Prescribed Treatment Plan


Once diagnosed, your healthcare provider will develop a treatment plan tailored to your specific condition. This may include a combination of prescription eye drops, oral medications, and sometimes even surgical intervention. It is crucial to follow the prescribed treatment plan diligently and complete the full course of medication to ensure effective eradication of the infection.



3. Practice Good Hygiene


To prevent the spread or recurrence of Acanthamoeba keratitis, it is essential to practice good hygiene. This includes:



  • Washing Hands: Always wash your hands thoroughly with soap and water before touching your eyes or applying any eye medications.

  • Proper Contact Lens Care: If you wear contact lenses, follow strict hygiene practices. Clean and disinfect your lenses as instructed by your eye care professional, and never sleep with your lenses on unless specifically advised by your doctor.

  • Avoiding Tap Water: Avoid exposing your eyes to tap water, including while swimming or showering. Use sterile saline solution or contact lens solution recommended by your doctor for rinsing your lenses or irrigating your eyes.



4. Protect Your Eyes


During the recovery period, it is crucial to protect your eyes from further damage or irritation. Consider the following:



  • Avoid Makeup: Avoid wearing eye makeup, as it can introduce bacteria or irritants to your eyes.

  • Wear Sunglasses: Protect your eyes from harmful UV rays by wearing sunglasses when outdoors. This can also help reduce light sensitivity.

  • Use Eye Protection: If engaging in activities that may expose your eyes to dust, chemicals, or other potential irritants, wear appropriate eye protection such as goggles or safety glasses.



5. Attend Regular Follow-up Appointments


Regular follow-up appointments with your ophthalmologist are crucial to monitor your progress and ensure the infection is fully resolved. These appointments also allow your doctor to assess your eye health, adjust medications if necessary, and address any concerns or questions you may have.



6. Seek Support


Living with Acanthamoeba keratitis can be emotionally challenging. Reach out to friends, family, or support groups to share your experiences and seek emotional support. Connecting with others who have gone through similar situations can provide valuable insights and encouragement.



7. Stay Positive and Patient


Recovering from Acanthamoeba keratitis may take time, and it is important to stay positive and patient throughout the process. Focus on following your treatment plan, practicing good hygiene, and taking care of your overall health. Remember that with proper care and management, many individuals with Acanthamoeba keratitis regain their vision and lead fulfilling lives.


Diseasemaps
4 answers
Very hard to say how can you be happy with AK as it is so debilitating turn the TV brightness down keep the house as dark as you can have romantic me as was a family by Candlelight and make the most of it. Remember two steps forward one step back it does take time you have to be patient podcast lots of relaxation music just do your best.

Posted Dec 4, 2018 by Claire 2400
AK affects the whole body not just the eye, so it is important to get lots of rest. It is helpful to have blackout curtains to keep a room darkened as the light will cause great pain

Posted Feb 24, 2019 by Liz Crane 2510
During the original diagnosis/treatment time it's absolutely impossible to be happy as the pain level is like no other. As the treatment starts to kill off the parasite the pain starts to diminish. To keep myself happy during this difficult time, I just told myself that I'm lucky to have sight in the remaining eye, and regardless of what happens, I'll still be able to see my grandchildren some day!

Posted Feb 27, 2019 by Traci 700

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In augustus 2015 dachten 2 ziekenhuizen dat het een infectie (Herpes-Simplex)was, dus met antibiotica behandeld. Na 7 weken had ik er genoeg van en ben gelukkig op eigen verzoek bij het AMC Amsterdam terechtgekomen. Via 7 kweken vloog de AK er dire...
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I started to have a problem with my eye after going on a boating holiday.  I went to my GP who sent me to the local hospital and they diagnosed blepharitis.  Three weeks later I  still had problems and was diagnosed with Corneal erosion.  The tre...
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2010 started my nightmare. It started as a simple it felt like someone poked me in eye. No redness or anything just felt like someone poked me. Three weeks I kept asking neighbor do you see anything and she said no. Fourth week it was extremely dry w...
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On 11/4/15, I scratched my cornea. A month later my eye still watered continuously. I was told I had recurrent erosion of cornea. On 1/11/16, I was diagnosed with shingles on my neck back and shoulders. 2/15/16, I was told I had herpes simplex in my ...
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Sono 6 mesi che lotto contro l'http://www.acanthamoeba.org/ e ancora non ne sono uscito. Sto assumendo PHMB e cortisone e speriamo di guarire al piu' presto

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Dear acanthamoeba keratitis friends, My question: can you tell me the name and adress of your hospital where you are threated? My explantion: Unfortunately I'm diagnosed with AK for 2 months now. Now this is the thing: I'm going to make a wo...
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Dear all, I am a scientific researcher trying to understand Acanthamoeba Keratitis and the impact of this disease it has on patients lives. I would love to connect with anyone who is willing to share their story and answer some or all of these ques...

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