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Which advice would you give to someone who has just been diagnosed with Achalasia?

See some advice from people with experience in Achalasia to people who have just been diagnosed with Achalasia

Achalasia advice

Achalasia is a rare disorder that affects the esophagus, making it difficult for food and liquids to pass into the stomach. If you have recently been diagnosed with achalasia, it is natural to feel overwhelmed and uncertain about what lies ahead. However, with the right approach and support, you can manage this condition and lead a fulfilling life. Here are some important pieces of advice to consider:



1. Educate Yourself


Take the time to learn about achalasia, its causes, symptoms, and available treatment options. Understanding your condition will empower you to make informed decisions and actively participate in your treatment plan. Consult reputable medical sources, talk to your healthcare provider, and consider joining support groups to connect with others who have experience with achalasia.



2. Find a Knowledgeable Healthcare Team


Seek out medical professionals who specialize in treating achalasia. A gastroenterologist or a motility specialist will have the expertise to guide you through your journey. Building a strong relationship with your healthcare team is crucial for effective management of your condition. They will help you navigate treatment options, provide ongoing care, and address any concerns you may have.



3. Explore Treatment Options


There are several treatment approaches available for achalasia, including medications, minimally invasive procedures, and surgery. Your healthcare provider will recommend the most suitable option based on your specific circumstances. It is important to discuss the potential benefits, risks, and long-term outcomes of each treatment method to make an informed decision that aligns with your goals and preferences.



4. Make Dietary Modifications


Adjusting your eating habits can significantly improve your quality of life with achalasia. Opt for smaller, more frequent meals and chew your food thoroughly. Avoid foods that are difficult to swallow, such as dry or tough meats, bread, and raw vegetables. Experiment with different textures and consistencies to find what works best for you. Eating slowly and in an upright position can also aid in digestion.



5. Seek Emotional Support


Living with a chronic condition like achalasia can be emotionally challenging. Reach out to your loved ones and let them know about your diagnosis. Their support and understanding can make a significant difference in your well-being. Additionally, consider joining support groups or seeking counseling to connect with others who share similar experiences. Sharing your feelings and concerns with people who understand can provide comfort and valuable insights.



6. Prioritize Self-Care


Managing achalasia requires taking care of your overall health. Prioritize self-care activities such as regular exercise, stress reduction techniques, and sufficient sleep. Engaging in activities you enjoy and finding ways to relax can help you cope with the challenges of living with a chronic condition.



7. Stay Positive and Persistent


Living with achalasia may have its ups and downs, but maintaining a positive mindset and staying persistent in your treatment journey is essential. Remember that everyone's experience with achalasia is unique, and finding the right treatment plan may take time. Stay in close communication with your healthcare team, ask questions, and advocate for yourself.



While achalasia can present challenges, it is important to remember that you are not alone. With the right support, treatment, and self-care, you can effectively manage your condition and lead a fulfilling life.


Diseasemaps
8 answers
The only advice I would give is - get to your doctor as soon as possible. The way this disease presented itself when I was first in my doctors office, it was so rare they couldn't give me a straight diagnosis.

At it's very worst, I was at my doctors office everyday - just so desperate to get some help. I was emotionally and physically drained. I'd got to the point that I couldn't even swallow a glass of water without bringing it back up. I'd already lived on mashed potato and gravy for 3 years, it was the only thing I could suck up through a straw!

Seek medical advice immediately and challenge the doctor if they say it's NOT ACHALASIA!

Posted Sep 20, 2017 by Teresa 3050
Breathe. Its not the end of the world. You can do this!

Before I'd give any advice I'd listen to their story and do a thorough environmental assesment. Many environmental toxins cause or exacerbate the condition.

Posted Oct 27, 2017 by JLMcK 5550
Find a doctor who listens to you. Be your own advocate that something is wrong.

Posted Jul 14, 2020 by Gina Manion 2500
It is okay not to be okay if you find difficulties go the hospital and don't give up in trying

Posted Aug 16, 2022 by [email protected] 2500
Translated from portuguese Improve translation
Do not be afraid of the surgery is the best option.

Posted May 27, 2017 by David 1250
Translated from spanish Improve translation
THAT YOU CONSULT A GOOD PROFESSIONAL, WHO HAS A WIDE KNOWLEDGE ABOUT THE DISEASE.

Posted Aug 22, 2017 by Lorena 2250
Translated from portuguese Improve translation
Calm with the promises of the doctors. Avoid operations only and, in the extreme case). If you know before, do not change their habits radically, seek the best professionals. If you blame, you was born as well.

Posted Sep 18, 2017 by Deivis 1150

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