Which advice would you give to someone who has just been diagnosed with Acute Respiratory Distress Syndrome?

See some advice from people with experience in Acute Respiratory Distress Syndrome to people who have just been diagnosed with Acute Respiratory Distress Syndrome

Acute Respiratory Distress Syndrome advice

Advice for Someone Diagnosed with Acute Respiratory Distress Syndrome (ARDS)

Receiving a diagnosis of Acute Respiratory Distress Syndrome (ARDS) can be overwhelming and distressing. ARDS is a severe lung condition that requires immediate medical attention. While I am not a doctor, I can provide some general advice that may be helpful for someone who has just been diagnosed with ARDS.

1. Seek Medical Care: ARDS is a serious condition that requires prompt medical intervention. It is crucial to follow your healthcare provider's advice and treatment plan. Make sure to attend all scheduled appointments and communicate any changes or concerns regarding your condition.

2. Understand the Condition: Educate yourself about ARDS to gain a better understanding of what you are facing. Learn about the causes, symptoms, and potential complications associated with ARDS. This knowledge will help you make informed decisions and actively participate in your treatment.

3. Follow Treatment Plan: Your healthcare provider will develop a personalized treatment plan based on your specific condition. This plan may include oxygen therapy, mechanical ventilation, medications, and other interventions. It is crucial to adhere to the prescribed treatment plan and take medications as directed.

4. Communicate with Your Healthcare Team: Establish open and honest communication with your healthcare team. Discuss any concerns, symptoms, or side effects you may experience. They are there to support you and can provide guidance on managing your condition effectively.

5. Engage in Pulmonary Rehabilitation: Pulmonary rehabilitation programs can be beneficial for individuals with ARDS. These programs focus on improving lung function, physical endurance, and overall well-being. Consult your healthcare provider to determine if pulmonary rehabilitation is suitable for you.

6. Practice Self-Care: Taking care of your overall health is essential when dealing with ARDS. Get plenty of rest, eat a balanced diet, and engage in light physical activity as recommended by your healthcare provider. Avoid smoking and exposure to secondhand smoke, as it can further damage your lungs.

7. Seek Emotional Support: Receiving an ARDS diagnosis can be emotionally challenging. Reach out to your loved ones for support and consider joining support groups or seeking professional counseling. Emotional well-being plays a significant role in coping with the condition.

8. Stay Informed: Keep yourself updated on the latest research and advancements in ARDS treatment. This knowledge can empower you to ask informed questions during medical appointments and explore potential new treatment options.

9. Follow COVID-19 Precautions: During the ongoing COVID-19 pandemic, individuals with ARDS are at a higher risk. Follow the recommended guidelines, such as wearing masks, practicing good hand hygiene, and maintaining social distancing, to reduce the risk of contracting respiratory infections.

10. Stay Positive: Maintaining a positive mindset can have a significant impact on your overall well-being. Surround yourself with supportive individuals, engage in activities you enjoy, and focus on the progress you make in managing your condition.

Remember, the advice provided here is general, and it is crucial to consult with your healthcare provider for personalized guidance and treatment recommendations. They are the best resource to address your specific needs and concerns.

Diseasemaps

That is hard because if you have just been diagnosed you are critically ill. When I was diagnosed, my pulse ox was 42 and I was immediately put into ICU. If this doesn't apply I would advise seeking support on ARDS.

Posted Mar 2, 2017 by seast318 2050

I don't see how you can give someone advise when they are diagnosed because they are usually in the ICU and very critically ill. If you could give advice mine would be to just deal with your illness right now. It is going to take all of your strenth to conquer ARDS.

Posted Mar 2, 2017 by SusanEast 1000

To take it one day at a time and conserve your energy. To allow yourself time to heal from the traumatic event. Most importantly to see a therapist to help process the trauma of the event.

Posted May 22, 2017 by Karin 2002

Get ready for a long recovery. It's a horrible thing to contract. you can't communicate with anyone. by the time I was diagnosed I was already in serious trouble. I couldn't breath, they had to tube me. I have no memory of even leaving my house to go to the hospital. I have sever memory loss before and after it.

Posted Jun 7, 2017 by Lyda 2442

Es difícil dar un consejo, ya que cuando ocurre, estás en terapia intensiva. En mi caso, en coma.

Posted Sep 15, 2017 by Maira Perez Tessino 1110

Do what your doctor recommends
In 2006 there wasn’t a lot of research on ARDS
I don’t believe there is anything a person can do to prevent this after all less than 200,000 cases are reported each year

Posted Dec 17, 2020 by tbrannock 2500