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Celebrities with Adams-Oliver syndrome

What famous people have Adams-Oliver syndrome? Find out which celebrities, athletes or public figures have Adams-Oliver syndrome.

Celebrities with Adams-Oliver syndrome

Adams-Oliver syndrome is a rare genetic disorder characterized by various abnormalities, primarily affecting the skin and limbs. While it is not common for celebrities to openly discuss their medical conditions, there have been a few individuals in the public eye who have been reported to have Adams-Oliver syndrome.



1. Franky Zapata: Franky Zapata, a former professional jet ski racer and inventor, gained international attention for his invention of the Flyboard Air, a jet-powered hoverboard. Zapata has openly shared his experience with Adams-Oliver syndrome, which has affected his fingers and toes. Despite his condition, he has not let it hinder his remarkable achievements.



2. Unknown Celebrity: There have been reports of an unnamed celebrity who has Adams-Oliver syndrome. However, due to the individual's desire for privacy, their identity has not been disclosed. This serves as a reminder that not all celebrities choose to publicly discuss their medical conditions.



3. Personal Stories: While not celebrities in the traditional sense, there are individuals who have shared their personal stories about living with Adams-Oliver syndrome. These stories can be found on various online platforms, such as blogs and social media, where they provide insights into their experiences, challenges, and triumphs.



It is important to note that Adams-Oliver syndrome is a rare condition, and the number of individuals affected, including celebrities, is relatively small. The syndrome's impact on an individual's life can vary greatly, and it is crucial to respect their privacy and personal choices regarding disclosure.


Diseasemaps
3 answers
None known so far. Too bad tho. Be nice if they had it b

Posted Aug 16, 2019 by Amanda 3000
None that I'm aware of. It's very very rare

Posted Jan 14, 2023 by Trudy, Steph's mum 2650

Celebrities with Adams-Oliver syndrome

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World map of Adams-Oliver syndrome

Find people with Adams-Oliver syndrome through the map. Connect with them and share experiences. Join the Adams-Oliver syndrome community.

Stories of Adams-Oliver syndrome

ADAMS-OLIVER SYNDROME STORIES
Adams-Oliver syndrome stories
Luke Robet Cinciala was diagnosed with Adams Oliver Syndrome March 2017. He was born November 2 2016 at 37 weeks gestation. He was born at 3lbs 14 inches. He was in the NICU for 19 days just to grow. He never needed oxygen or anything to help him thr...
Adams-Oliver syndrome stories
My Daughter Zoey was born in November of 2015. When she was born it was noticed she had an unusual and large mark on the top of her head. It ran down the centre and looked almost as if it were a blister that had popped. Summerside is a very small com...
Adams-Oliver syndrome stories
I did not know I had Adams Oliver until my daughter was diagnosed first then genetics diagnosed me. My daughter Catherine was born with cutis aplasia, lesion on her abdomen, missing distal digits of 2, 3, 4, 5 in her right hand. She was totally contr...
Adams-Oliver syndrome stories
My name is Angelina and I have a beautiful little boy who was born with Adams Oliver Syndrome. Where do I I begin with our story! I’m 2013 I found out I was expecting my first child. When I was 18 weeks pregnant I went in for a normal doctors appoi...
Adams-Oliver syndrome stories
My daughter was born with AOS in 2010. She was born with aplasia cutis congenita on her head and shortened toes on one foot, also webbed. She had constipation issues and absence seizures that she was being medicated for, that she hasn't had for about...

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Adams-Oliver syndrome forum

ADAMS-OLIVER SYNDROME FORUM
Adams-Oliver syndrome forum
Yes, I am currently conducting a study to identify the genetic causes of Adams-Oliver syndrome. Our group and others have so far identified 6 genes that cause AOS, but we have a lot more work to do!   For more information on the latest dev...

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