Story about Addison Disease , Autism.

POMC (Pro-Opiomelanocortin Deficiency)


My son was diagnosed with POMC before his 2nd birthday in 2010.

As far as we know he is the only one in the USA but we are looking. because I have created POMC Island I have been contacted by 3 other families.http://www.facebook.com/P.O.M.C.Island

The National Institute of Health (N.I.H.) has given him a second Dx of Sim1

He has a long list of health issues.

Adrenal Insuficciency

Hypothyroidism

Panhypopituitaryism

Hyperphagia

Hypothalamic disorder

just to give the top 5

Nate has a great joy about him

 

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1 comment
0

Thank you for what you do! My son's name is also Nate (Nathan).

I am an 18 year survivor.

Commented 7 years ago Susan 90

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