Stories of Adenomyosis

STORY
Adenomyosis stories
I have always had painful periods that would make me miss school and work, but was told it was normal. Had my first child at 21, after she was born I developed deep rectal pain that would last 12 hours straight of me laying in bed screaming on the fi...
Adenomyosis stories
I have suffered since age 13 with "bad" periods.Heavy, painful and constant overflows or accidents as a teenager - debilitating pain that saw me take prescription pain killers which didn't even touch the pain. Looking back it was a terrible time, I w...
Adenomyosis stories
I have suffered since the age of 25, although had symptoms before then. Only officially diagnosed in 2012 at the age of 35 after being diagnosed with endometriosis when I was 32 by a general gynae. Adenomyosis diagnosis was from an endometriosis spec...
Adenomyosis stories
In my role as an endometriosis advocate, I am helping a company who are researching adenomyosis and who are looking for women living in the US, who have adeno (and also endo) diagnosed by MRI, to interview by phone at your convenience. (There are a c...
Adenomyosis stories
My Adenomyosis is diffuse and was diagnosed through an MRI with contrast and recto signal gel.  Adenomyosis in my case is more of a form of deep infiltrating endometriosis invading the outer surface of my uterus from behind. Main disease is en...

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Adenomyosis forum

QUESTION
Question 219
Hello, my doctor has diagnosed me with Adenomyosis... it is not 100% sure so I’m having a magnetic resonance to confirm... Is it common on women of my age? I though not… thanks 

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Statistics of Adenomyosis

20 people with Adenomyosis have taken the SF36 survey. Mean of Adenomyosis is 1268 points (35 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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