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How is Adrenal Cortical Carcinoma (ACC) diagnosed?

See how Adrenal Cortical Carcinoma (ACC) is diagnosed. Which specialists are essential to meet, what tests are needed and other useful information for the diagnosis of Adrenal Cortical Carcinoma (ACC)

Adrenal Cortical Carcinoma (ACC) diagnosis

Adrenal Cortical Carcinoma (ACC) is a rare and aggressive cancer that originates in the outer layer (cortex) of the adrenal glands. These glands are located on top of the kidneys and are responsible for producing hormones that regulate various bodily functions.


Diagnosing ACC can be challenging due to its rarity and the non-specific symptoms it presents. However, there are several diagnostic methods that healthcare professionals utilize to identify and confirm the presence of ACC.


Medical History and Physical Examination: The diagnostic process typically begins with a thorough medical history review and physical examination. The healthcare provider will inquire about symptoms, risk factors, and any relevant family history. During the physical examination, they may palpate the abdomen to check for any abnormal masses or tenderness.


Imaging Tests: Imaging tests play a crucial role in diagnosing ACC. Computed Tomography (CT) scan is commonly used to visualize the adrenal glands and detect any abnormalities. It provides detailed cross-sectional images that help identify the size, location, and characteristics of the tumor. Magnetic Resonance Imaging (MRI) may also be employed to obtain more detailed images of the adrenal glands.


Biopsy: A biopsy is often necessary to confirm the diagnosis of ACC. During this procedure, a small sample of tissue is extracted from the tumor and examined under a microscope by a pathologist. There are different types of biopsies that can be performed, including fine-needle aspiration biopsy (using a thin needle to extract cells) or surgical biopsy (removing a small piece of the tumor during surgery). The biopsy helps determine the tumor's histological type and grade, providing valuable information for treatment planning.


Hormone Testing: ACC tumors often produce excessive amounts of certain hormones, such as cortisol or androgens. Therefore, hormone testing is an essential component of the diagnostic process. Blood and urine samples are collected to measure hormone levels. Elevated levels of specific hormones can indicate the presence of ACC.


Genetic Testing: In some cases, genetic testing may be recommended to identify any inherited genetic mutations that could contribute to the development of ACC. This testing can help determine if there is an increased risk of ACC in family members.


Staging: Once ACC is diagnosed, staging is performed to determine the extent of the cancer and guide treatment decisions. Staging involves additional imaging tests, such as CT scans of the chest and abdomen, to assess if the cancer has spread to other organs or lymph nodes.


It is important to note that the diagnosis of ACC requires a multidisciplinary approach involving endocrinologists, oncologists, radiologists, and pathologists. The expertise of these specialists is crucial in accurately diagnosing ACC and developing an appropriate treatment plan.


Diseasemaps
4 answers
Mine was diagnosed by biopsy. Ive learned that ACC tumors should NEVER be biopsied, it can cause the tumor to spread.
Adrenal tumors should be treated as ACC and tested after removal by open surgery.
Dr Gary Hammer at U of M is an endocrinologist specialising in ACC.
Please search out a Dr with knowledge, most Dr's will never see an ACC patient in their life. You should not be the first! Seek out support groups on Facebook that have people willing to share info about their Dr's!

Posted Mar 9, 2018 by Accmom 2500
A simple blood test for testosterone was the first test that showed an abnormality.

Posted May 22, 2018 by Kim 1600
Des examens complémentaires échographie abdominale pelvienne interne externe, radio des poumons, scanner permettent de poser le diagnostic rapidement. Des centres de référence existent en France comme institut curie et Gustave roussy permettent d'avoir les bons oncologues, chirurgiens

Posted Feb 26, 2019 by Flor 400

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Lung and liver mets. Initial surgery 2014. EDP- had some stability and some growth. 2nd abdominal surgery. Both Lungs 2015. Used Caris and tried Irinotecan - some shrink but new growth too. 3rd abdominal surgery. Lung surgery. Ablation. Tried taxol- ...
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My daughter Megan was diagnosed with ACC when she was 14 months old in 2011.  She had the tumor the adrenal glad and part of her lung removed.  She then went through 8 months of intense chemothrapy(5 differant kinds)  she want home from the hospi...
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My husband, was suffering from high blood pressure for a couple of years, but not to poorly with it. In August 2015, his feet began to swell badly and he gained lots of weight over a month. We where sent to Kings hospital London, and found he was suf...
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My gorgeous brave mother aged 44 has been diagnosed with stage 4 ACC that has spread to the lungs. She's currently undergoing chemo at the christies and taking mitotane. I have a 9 month old baby son and trying to do everything I can to support her t...

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Adrenocortical carcinoma (ACC) is a rare, highly aggressive cancer of adrenal cortical cells, which may occur in children or adults. Most adrenocortical carcinomas are not diagnosed until they have grown quite large.Adrenocortical carcinoma is a rare...

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