A Adult-onset Stills Disease interview .

McKenna's interview


How did all start?

I got a viral infection that never went away.

Do you already have a diagnosis? How long did it take you to get it?

Yes; 6 months

For what medical specialties have you been treated? What has been the most useful specialty for your?

Rheumatologists, Infectious Disease Specialist, Allergist, Surgeon, Family Doctor; Rheumatologists.

What has been the most useful thing for you so far?

Immunosuppressive drugs

What have been your biggest difficulties?

Fatigue

How has your social and family environment reacted? Have your social or family relationships changed?

I have had to depend on my family to help me do things I used to be able to do by myself.

What things have you stopped doing?

None

What do you think about the future?

I hope to eventually be symptom free.

So far, which years have been the best years in your life? What have you done during them?

My high school years.

What would you like to do if you didn’t have your condition?

Take more hours worth of classes in college to finish earlier.

If you had to describe your life in a sentence, what would it be?

Interesting.

Finally, what advice would you give to a person in a similar situation?

Don’t let Still’s steal your dreams.


Dec 21, 2017

By: McKenna

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