Living with Adult-onset Stills Disease. How to live with Adult-onset Stills Disease?

Living with Adult-onset Still's Disease

Adult-onset Still's Disease (AOSD) is a rare inflammatory disorder that primarily affects adults. It is characterized by high fevers, joint pain, rash, and systemic inflammation. Living with AOSD can be challenging, but with proper management and support, individuals can lead fulfilling lives. Here are some strategies to help you live with Adult-onset Still's Disease:

1. Seek Medical Care

It is crucial to consult with a rheumatologist who specializes in autoimmune diseases like AOSD. They can provide an accurate diagnosis, develop a treatment plan, and monitor your condition regularly. Regular check-ups and open communication with your healthcare team are essential.

2. Follow Treatment Plan

Adhering to the prescribed treatment plan is vital in managing AOSD. This may include nonsteroidal anti-inflammatory drugs (NSAIDs), corticosteroids, disease-modifying antirheumatic drugs (DMARDs), and biologic therapies. Take medications as directed and report any side effects or concerns to your doctor.

3. Manage Symptoms

There are several strategies to help manage the symptoms of AOSD:

• Joint Pain: Applying heat or cold packs, gentle exercises, and physical therapy can help alleviate joint pain and stiffness.


• Fever: Resting, staying hydrated, and using over-the-counter fever reducers can help manage fevers.


• Rash: Keep your skin clean and moisturized. Consult a dermatologist for appropriate skincare recommendations.


• Fatigue: Prioritize rest and sleep, and conserve energy by pacing yourself throughout the day.

4. Maintain a Healthy Lifestyle

Adopting a healthy lifestyle can positively impact your overall well-being:

• Exercise: Engage in low-impact exercises like swimming, walking, or yoga to improve joint mobility and overall fitness. Consult your doctor or a physical therapist for suitable exercises.


• Diet: Follow a balanced diet rich in fruits, vegetables, whole grains, and lean proteins. Some individuals find that avoiding certain foods, such as processed foods or those high in sugar, can help manage symptoms.


• Stress Management: Practice stress-reducing techniques like deep breathing, meditation, or engaging in hobbies you enjoy.


• Sleep: Aim for quality sleep by establishing a regular sleep routine and creating a comfortable sleep environment.

5. Seek Support

Living with AOSD can be emotionally challenging. Seek support from friends, family, or support groups who understand your condition. Sharing experiences and coping strategies can provide comfort and encouragement.

6. Stay Informed

Stay updated on the latest research and advancements in AOSD treatment. Knowledge empowers you to make informed decisions about your health and treatment options. Reliable sources such as medical journals, reputable websites, and patient advocacy organizations can provide valuable information.

Remember, everyone's experience with AOSD is unique, and what works for one person may not work for another. It is essential to work closely with your healthcare team to develop an individualized management plan. With proper care, support, and self-care, you can lead a fulfilling life while managing Adult-onset Still's Disease.