Help us to help more people
  2. Alagille Syndrome
  3. Advice
Staying cool and away from too much heat (which is a lot in crowded or dusty places) really helped me.
by Shambhavi Ravishankar
Asking question's. No question is stupid/dumb.
by Mom - Alysha (Riley Mcmillen)
Ouvrir une association pour faire connaître cette maladie
by Président association alagille France
Rifampin
by Tanner
Family always being by my side.
by Malachi
friends
by jim tucker
Taking Rafampin Has Decreased The Itching
by Joshua
Alagilles syndrome mainly affected my Liver.
by Jordan
ursofalk
by Blazhe Arsov
For the itching, instead of scratching I would twirl yarn in my hands so that I didn't hurt myself.
by Shambhavi Ravishankar
Talking/meeting other Alagille Parents
by Mom - Alysha (Riley Mcmillen)
Ne.plus rester seul et incompris
by Président association alagille France
Infant home based services
by Tanner
Knowledgeable doctors
by Malachi
family
by jim tucker
Taking Vitamins Has Made Me Grow, Staying Away From Greasy Foods Has Made Me Feel Better
by Joshua
I got put on the Liver Transplant list 1/7/14
by Jordan
Vitamins Adek's
by Blazhe Arsov
Drinking a lot of freshly made Carrot - Beetroot Juice really helped my skin and my general energy levels.
by Shambhavi Ravishankar
Se battre pour les familles et enfants
by Président association alagille France
Children's hospital
by Tanner
Faith
by Malachi
food
by jim tucker
Recived the call and had my Liver Transplant 28/4/16
by Jordan
pregestimill milk powder
by Blazhe Arsov