Weekly augmentation therapy
No fumar
Medicinal cannabis
On several asthma medications, but still uncontrolled
Writing a book based on true stories of chronic illness, chronic pain, rare diseases, and PTSD.
National Jewish In Denver has been extremely helpful with education.
Receiving augmentation therapy
Turmeric and honey every morning in tea opens lungs up and helps with inflammation
Have tried virtually all inhalers. Seem to get the best results from Tudorza.
Having doctors/specialists that understand and take a keen interest in you and understand this condition
realizing i can only change me; i am not responsible for the actions of others nor can I change them.
Trying to live a healthy lifestyle ,diet and walking.
Vibrating vest 30 minutes 2 times a day
my dog , she helps me get out and walk ,exercise
Exercise
Friendships and social interactions with others who have my condition
Caring Doctors and teams (rehab)
Prolastin C
Pain medicine
My friends
Exercise and healthy eating
We found out leigh was zz at five weeks old at Birmingham children's hospital
Ombrez (Indacaterol) daily
Azithromycin
Making me a priority
I learn to crochet to help pass the hours
Knowing why my lungs didn't work properly.........................I could start avoiding the triggers
EXERCISE AS MUCH AS YOU CAN
I've become my own advocate, as well as offering support and advice to others, and it's given me a sense of control over my own issues and a sense of making a difference in other people's lives. I'm seeking the very best medical help I can find, (Mayo).
Increasing exercise
Alpha-1 Support Groups and helping others
The wonderful support from my husband Peter and daughter Katie
I was immediately prescribed Prolastin C Infusions, which are given once a week, for life.Also checking my oxygen stats daily.
Support system
replacement therapy /lung infusion
replacement therapy /lung infusion
Yoga
Use a bathrobe in stead of a towel for drying after shower.
I lost both my parents in a years time to this, I want to live longer than they did
Family
The Oxygen I'm now on for 15 hrs a day
best friends never gets tired of fighting with me
Physical exercise
My children
Losing excessive weight.
Training
My inhalers. Exercising
Plenty of exercise
Keep as fit as possible