Story about Alport Syndrome .

My son!

Sep 19, 2017

By: Erin

Year Condition Began: 1999


Born with Alports. Has been medicated since he was 2 months. Could not tell anything was wrong at all. In the last few years he has lost a bit of hearing and had to get glasses. Now he is 18 and we are in the first steps of starting the transplant. It's finally here and scary for me(mom) but my son just says he is greatfull he has had the life he has. And it's just a transplant. Oh if it was just that simple.

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