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How do I know if I have Alport Syndrome?

What signs or symptoms may make you suspect you may have Alport Syndrome. People who have experience in Alport Syndrome offer advice of what things may make you suspicious and which doctor you should go to to receive treatment

Do I have Alport Syndrome?
0 answers

Do I have Alport Syndrome?

Couple and Alport Syndrome

Is it easy to find a partner and/or maintain relationship when you have Alp...

History of Alport Syndrome

What is the history of Alport Syndrome?

Alport Syndrome treatments

What are the best treatments for Alport Syndrome?

1 answer
Alport Syndrome diagnosis

How is Alport Syndrome diagnosed?

1 answer
Prevalence of Alport Syndrome

What is the prevalence of Alport Syndrome?

Alport Syndrome advice

Which advice would you give to someone who has just been diagnosed with Alp...

1 answer
Alport Syndrome jobs

Can people with Alport Syndrome work? What kind of work can they perform?

1 answer
Alport Syndrome symptoms

Which are the worst symptoms of Alport Syndrome?

1 answer

World map of Alport Syndrome

Find people with Alport Syndrome through the map. Connect with them and share experiences. Join the Alport Syndrome community.

Stories of Alport Syndrome

ALPORT SYNDROME STORIES
Alport Syndrome stories
In 2012 our youngest daughter, born in 2010, got hospitalized due to pneumonia. During basic testings they discovered protein and microscopic hematuria in her urine samples, and since they couldn't find any reason to why they sent her for a genetic s...
Alport Syndrome stories
My dad, Lee Spracklen, knew the minute I was born a girl that I had Alport Syndrome.  My dad had it and our family has X linked Alports.  Which meant he gave me his bad X. My dad had issues with his kidneys as a young boy. And had a kidney transpla...
Alport Syndrome stories
My name is Sarah I'm from East Yorkshire, England. I was diagnosed at the age of 2. I have been under the watch of hospitals my whole life. In 2010 I was told my kidney was failing a year later I was on Pd dialysis. During this time my brother also w...
Alport Syndrome stories

Tell your story and help others

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Alport Syndrome forum

ALPORT SYNDROME FORUM

Ask a question and get answers from other users.

Ask a question

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map