Lexi has had epilepsy since she was 24hrs old and AHC spells since the first week of life. She was diagnosed with the ATP1A3 d801n mutation when she was 3.5yrs old and since then she has been on flunarizine which helped her some. She started solumedr...
Some time after Xavier was born the social worker asked if we would foster him until family dynamics could be improved. This turned into a permanent arrangement when Xavier showed symptoms of AHC at six months and began weekly hospital visits. The ey...
2 people with Alternating Hemiplegia Of Childhood have taken the SF36 survey. Mean of Alternating Hemiplegia Of Childhood is 1258 points (35 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey
