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What is the prevalence of Alveolar Capillary Dysplasia?

How many people does Alveolar Capillary Dysplasia affect? Does it have the same prevalence in men and women? And in the different countries?

Prevalence of Alveolar Capillary Dysplasia

The prevalence of Alveolar Capillary Dysplasia (ACD) is extremely rare, making it a highly uncommon condition. ACD is estimated to affect approximately 1 in every 100,000 to 150,000 live births. This congenital disorder primarily affects the development of lung blood vessels, leading to severe respiratory distress in newborns. Due to its low prevalence, ACD poses significant challenges in diagnosis and treatment. Early recognition and intervention are crucial for improving outcomes in affected infants. Research and awareness efforts are ongoing to better understand this rare and life-threatening condition.



Alveolar Capillary Dysplasia (ACD) is an extremely rare congenital disorder affecting the development of the lungs. It is characterized by abnormal development of the alveolar capillaries, which are tiny blood vessels essential for gas exchange in the lungs. ACD is typically diagnosed in newborns or infants and is associated with severe respiratory distress and pulmonary hypertension.



The prevalence of Alveolar Capillary Dysplasia is estimated to be around 1 in 50,000 to 1 in 100,000 live births. Due to its rarity, ACD is considered a challenging condition to diagnose accurately. The exact cause of ACD is still unknown, although some cases have been linked to genetic mutations. The prognosis for infants with ACD is generally poor, with most cases resulting in early death within the first few weeks of life.



Early recognition and diagnosis of ACD are crucial for appropriate management and potential lung transplantation. Genetic counseling may be recommended for families affected by ACD to understand the risk of recurrence in future pregnancies. Ongoing research and advancements in medical technology are essential to improve our understanding of this rare disorder and develop potential treatment options.


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Prevalence of Alveolar Capillary Dysplasia

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World map of Alveolar Capillary Dysplasia

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Stories of Alveolar Capillary Dysplasia

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Alveolar Capillary Dysplasia forum

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