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  2. Amyloidosis
  3. Advice
2 cycles of cybord, Auto SCT in Oct 2013
by Tina Pfahler
prayer
by Stephanie Allison
I'm on TPN now because I was down to 87 lbs. now I weigh 127 lbs.
by Rhonda
Egcg extract from green tea are m'y best Way in this disease .
by Marylou
Liver transplantation
by Evgenios Kyriakou
After A Stem Cell Transplant in April 2012 I went into remission
by Gerry Ligtermoet
The stem cell transplant made me feel better
by Tina
The time off Chemo
by Gary Paxton
Answered prayer
by kathy
AMYLIDOIS IS NOT ON YOUR MAP
by frank angelucci
Had stem cell transplant in 2008
by Brenda
5 months of Velcade with Dexamethasone
by S. DeMarco
Nothing, I have got progressively worse over 13 years with overwhelming neuropathy with amyloid infiltrated palatal nerves.
by Pat
supportive family
by Michael
Competent Doctors and Hospital
by Ann Duggan
Family support
by Erin Kelly
My husband does not have to suffer any longer with this awful disease.
by Stacey
Creme hidrante
by Eloise
corticoides
by Arte
eating properly
by amy haua
Primeiro passo foi fazer a biopsia, pois o médicos que passei demoraram em fazer biopsia tratavam de outras coisa
by Meiry Francieli
Referral to National Amyloidosis Centre
by Mark
Faith in God and daily prayer helps me.
by Beth
My faith in God
by Sharon
My faith in God
by Sharon
Good diet and exercise
by James
Having Doctors that really care/
by Jim
Faith in God.
by Karen
Keep on those doctors.
by David
Chemo Helping a lot
by beachbanditt
2 weeks of low-dose Radiation halted the progression of the Amyloid
by Lisa
A great husband.
by
I could not have made it without my husband.
by Nancy
rvd treatment
by randy
My husband and I chose to go to 51 of the 116 State Parks during the summer of treatment, to be under the tree canopy, to watch birds, find the rippling water in the brooks.
by Phyllis
Exercising and walking always has helped me.
by PlanoCJ
Mother to Erin Kelly, who passed away May 27,2016, of AA of unknown cause.
by Joan
Drinking alkaline water
by Nancy
Nothing yet. New diagnosis
by Dawn
I made the decision to go ahead with my transplant.
by Dennis
My husband being my caregiver.
by Tina Pfahler
support
by Stephanie Allison
2years ago doctors want transplant m'y heart stage 3 . I dont make and m'y heart are like a new with egcg extract
by Marylou
Lots of exercise like cycling and gym
by Evgenios Kyriakou
Being as active as you can.
by Gerry Ligtermoet
My son has helped me fight this terrible battle
by Tina
Going for bike rides
by Gary Paxton
Support from family, friends and doctors
by kathy
Had 32 weeks Cybor D in 2013
by Brenda
Always look forward, Focus on what you can do, Don't mourn what you can no longer do!
by S. DeMarco