Katie's interview


How did all start?

I woke up one morning and couldn't move

Do you already have a diagnosis? How long did it take you to get it?

Yes, it took well over a year to be diagnosed with it

For what medical specialties have you been treated? What has been the most useful specialty for your?

I have not found anything that helps honestly

What has been the most useful thing for you so far?

When I have an episode do as little as possible

What have been your biggest difficulties?

walking, running, standing up, wanting up steps

How has your social and family environment reacted? Have your social or family relationships changed?

no, they are all supportive

What things have you stopped doing?

cheering, softball

What do you think about the future?

I don't know what to think about it

What would you like to do if you didn’t have your condition?

play college softball and cheer for the great white sharks

If you had to describe your life in a sentence, what would it be?

Most confusing and hardest thing you can think of

Finally, what advice would you give to a person in a similar situation?

do you. don't let others judge on what they don't know


Jan 30, 2018

By: Katie

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