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Can people with Anencephaly work? What kind of work can they perform?

See how people with experience in Anencephaly give their opinion about whether people with Anencephaly can work and what kind of jobs are more appropriated for people with Anencephaly

Anencephaly jobs

Can people with Anencephaly work?


Anencephaly is a rare and severe neural tube defect that occurs during fetal development. It is characterized by the absence of a major portion of the brain and skull. Unfortunately, individuals with anencephaly typically have a very short life expectancy and face significant physical and cognitive challenges. Due to the severity of their condition, it is highly unlikely that individuals with anencephaly can engage in traditional employment or perform work in the conventional sense.


What kind of work can they perform?


Given the profound neurological impairments associated with anencephaly, individuals affected by this condition require extensive medical care and support throughout their lives. Their cognitive and physical limitations make it extremely challenging for them to engage in any form of work that requires complex tasks, decision-making, or communication skills.


However, it is important to note that each individual with anencephaly is unique, and their abilities and limitations may vary. Some individuals may possess limited motor skills and basic sensory functions, allowing them to participate in certain activities that provide sensory stimulation and promote their overall well-being.


Supportive care and therapy:


Individuals with anencephaly require specialized care and support from healthcare professionals, including neurologists, pediatricians, and therapists. Supportive care focuses on managing their medical needs, ensuring their comfort, and maximizing their quality of life.


Therapeutic interventions, such as physical therapy, occupational therapy, and speech therapy, can be beneficial for individuals with anencephaly. These therapies aim to improve motor skills, enhance sensory experiences, and promote communication abilities to the best extent possible.


Family and community involvement:


Family members play a crucial role in the care and well-being of individuals with anencephaly. They provide love, support, and a nurturing environment. Families often engage in activities that promote sensory stimulation, such as gentle touch, soothing sounds, and visual stimuli, to create a positive and enriching experience for their loved ones.


Community involvement is also important for individuals with anencephaly. Participating in social events, support groups, and recreational activities can contribute to their overall happiness and sense of belonging.


Conclusion:


While individuals with anencephaly face significant challenges and limitations, their well-being and quality of life can be enhanced through specialized care, therapy, and the support of their families and communities. Although traditional employment is not feasible for individuals with anencephaly, their unique abilities and needs should be recognized and respected, allowing them to live fulfilling lives to the best of their abilities.


Diseasemaps
2 answers
Statistically, Anencephaly is a terminal diagnosis.

Posted Aug 15, 2017 by Cak 800

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ANENCEPHALY STORIES
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I am an advocate for Anencephaly Awareness and run a group on Facebook, http://www.facebook.com/groups/anencephalyhope I provide support and care packages for families and specially made hats for babies with Anencephaly. 
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