Stories of Angelman Syndrome

STORY
Angelman Syndrome stories
My daugther Elena was the first diagnosed Angelman Syndrome case in Spain.  She was almost 8 y.o. when we received the diagnose and this was devastating for us.  We were alone, completely alone until we discovered the Angelman mailing list ...
Angelman Syndrome stories
My son, Mason is 14 yrs old and was diagnosed with Angelman Syndrome at age 2. He's an amazing spirit and absolutely the light of my life. 
Angelman Syndrome stories
"Bella" was born with Angelman Syndrome. Mom: (ME) Crystal B. Dad: Bert B.   She was born at UNC Hospital in 2009. Three years later, we went back to that same hospital just to find out our beautiful daughter has Angelman Syndrome and so our...
Angelman Syndrome stories
My son is 14 years old and Del+. We live in North Wales. I have 3 other children. I am chair of ASSERT which is the UK charity supporting families of those with Angelman Syndrome. I have been a trustee of the charity for 10 yrs. Please visit www.ange...
Angelman Syndrome stories

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Statistics of Angelman Syndrome

2 people with Angelman Syndrome have taken the SF36 survey. Mean of Angelman Syndrome is 2645 points (73 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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Angelman Syndrome

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