Swllings of face. Throat stomach.hands feet. Stress. Dental problems. Heat. Cold can bring it on...its an autoimmune disease.

There are 361 people in the Hereditary Angioedema map

Hereditary Angioedema life expectancy

What is the life expectancy of someone with Hereditary Angioedema?

9 answers
Celebrities with Hereditary Angioedema

Celebrities with Hereditary Angioedema

1 answer
Is Hereditary Angioedema hereditary?

Is Hereditary Angioedema hereditary?

6 answers
Is Hereditary Angioedema contagious?

Is Hereditary Angioedema contagious?

6 answers

HEREDITARY ANGIOEDEMA

Synonyms:
Fatigur. Stress. Irritability. Itching. Hives. Sorenesshae

Types:
Haea 1.

SYSTEMS AFECTED

Circulatory system
Circulatory system
Digestive system
Digestive system
Endocrine system
Endocrine system
Immune system
Immune system
Lymphatic system
Lymphatic system
Nervous system
Nervous system

Symptoms

  • Swellings.

Treatments

  • Cinyrze. Fyrizar. Berninent. Reconost. Kalibator
  • Specialist who treat it

    Allergology
    Natural treatment of Hereditary Angioedema

    Is there any natural treatment for Hereditary Angioedema?

    5 answers
    ICD9 and ICD10 codes of Hereditary Angioedema

    ICD10 code of Hereditary Angioedema and ICD9 code

    4 answers
    Living with Hereditary Angioedema

    Living with Hereditary Angioedema. How to live with Hereditary Angioed...

    8 answers
    Hereditary Angioedema diet

    Hereditary Angioedema diet. Is there a diet which improves the quality...

    8 answers

    Stories of Hereditary Angioedema

    STORY
    Hereditary Angioedema stories
    Mine started in 2009 with my first swell, it was my lips and cheek. That is the same time the ucartia started also. It took my Dr. 5 years to find something to help me control and survive my Angioedema. I never knew how bad this could be till I was d...
    Hereditary Angioedema stories
    My earliest memory of HAE symptoms was when I was about 6 or 7.  I would occasionally get the abdomen swelling, be sick and sweating all day, then I would finally vomit and then feel better, go to sleep and be better the next morning.  I co...
    Hereditary Angioedema stories
    Desde niño tuve que soportar los diversos episodios de AEH sin saberlo, pasando de medico en medico con diversidad de diagnosticos y ordenes de cirugias innecesarias, gracias a Dios no acudi a ninguna. Fue hace tres años que optuve el d...
    Hereditary Angioedema stories
    I was diagnosed accidentally, after seeing a TV show where the host talked about her HAE in 2014. My first attack was at 8, when I was mistakenly hospitalized with appendicitis.  The surgery wasn't done, because I felt better in 3 days.  N...
    Hereditary Angioedema stories
    i was dx in 2008 with my first fasel swell . im hae type 2 . im co founder of the facebook group ( https://www.facebook.com/groups/156649074393978/ )

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    Hereditary Angioedema forum

    QUESTION
    Question 510
    Hi All, Is anyone aware of Cinryze experiencing a shortage supply? If so, why and where is this shortage (US or Europe)?   Thanks!
    Question 512
    Hi All, Is anyone aware of Cinryze experiencing a shortage supply? If so, why and where is this shortage (US or Europe)?   Thanks!
    Question 447
    Hi All, For those of you currently (or in the past) taking Cinryze, Firazyr, or Kalbitor, has Shire always paid for your co-pays through the co-pay assistance program or was there a limit to how much they paid? I've also heard that the case managers...
    Question 434
    Hi Everyone, I am interested in understanding and learning about your perspective on treatments and services available for HAE. What happens when you lose insurance and you need to obtain treatment? During this time, are you given treatment fre...
    Question 439
    Hi Everyone, I'm trying to understand what it is like for people with HAE. Therefore, would you ever switch treatment? Why or why not? What happens if you lose insurance coverage? Are you still recieving treatment? Was there a time where you had to ...

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    Statistics of Hereditary Angioedema

    33 people with Hereditary Angioedema have taken the SF36 survey. Mean of Hereditary Angioedema is 1637 points (45 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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