Help us to help more people
  2. Hereditary Angioedema
  3. Advice
Finding An Allergist/Immunologist Who Specializes in HAE
by Katie
Began Prophylactic medication 8 months ago.
by Teresa Scruton
Protect myself from UV radiation and extreme heat / Protegerme del la radiación UV y el calor extremo
by Mariana
Ser diagnosticado tras un largo tiempo de incertidumbre
by Antonio
Cinryze
by Jennifer
family support
by Evangelia
Berinert
by Nikki
If you don't have a family member with HAE I encourage getting hooked up with other patients
by Donna
Right medication
by Jonellespencer
Started Cinryze
by Chrissy
5 years of Danazol
by Remko
Cinryze
by Mary Helen
Cinryze to prevent attacks.
by [email protected]
Allergy shots
by Kyleenicole88
Cinryze
by Tanya
Proper diagnosis
by Natalie
Endlich wissen was für ne Krankheit es ist.
by Beat
less stress
by Nikki
6 years infusing Cinryze
by Karol
Rest
by bdemel1974
working from home
by dawn stott
Cinryze
by Renee L'Ecuyer
Firazyr
by Richard Anderson
No special diets, just eat what my body needs and not cravings and knowing the difference
by Linda
cynryze
by Amy
Danazol 200mg bid
by C D
Firazyr
by Danielle
Hubbys support
by cathy klunk
My children and Grandchildren that give me reason to continue fighting.
by Linda Acton
Communicate with everyone surrounding me about the disease
by Stefan
no alchohol or drugs
by Justin
Medication
by Hannah Martell
Ability to self infuse meds through port.
by nancy bachie
Cinryze
by Kat
Berinert helps with attacks and makes me feel overall better.
by Alesia Gurasnova-Nelson
the support of others
by Bonnie J Mrozek
Access to C1 inhibitor treatment
by Jacquie L.- Badiou
My Family
by Beverly Moya
My husband is always supporting of my condition
by Susie
My family and friends support me and take care of me when I'm not doing well
by Lily Sagers
Getting diagnosed
by Ai Zhan
Family support
by Tina
Knowing the facts
by Trudy parker
Staying positive and calm.
by Lorraine
Firazyr
by Shauna
Retirement has reduced my stress - a big trigger - to practically 0.
by Laura Lewis
Hiking and walking
by Larry Singleton
Never saying no to what I'd like to do because of fear of this disease.
by Nicole Unger
Doctors who have experience with HAE patients or those who do not, but are willing to listen and learn
by Emily
The Hae Australiasia Support Page
by Jusinta Gliddon