Oh my goodness your story kills me. I have just been diagnosed with HAE and am super nervous to get my children ages 7 and 11 tested. I wouldn't wish this disease on anyone.
Sorry Katie just saw this now. There is one thing HAE gives us....resilience. Never under estimate your strength. 2 of my children have HAE. I find it more difficult being a caregiver then a survivor. I hear you...it's hard.
Jacquie