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Celebrities with Hereditary Angioedema

What famous people have Hereditary Angioedema? Find out which celebrities, athletes or public figures have Hereditary Angioedema.

Celebrities with Hereditary Angioedema


Hereditary Angioedema (HAE) is a rare genetic disorder characterized by recurrent episodes of swelling in various parts of the body. While it affects individuals from all walks of life, including celebrities, it is important to note that HAE does not discriminate based on fame or fortune. Here are a few well-known figures who have publicly shared their experiences with Hereditary Angioedema:



Fran Drescher



Fran Drescher, best known for her role as Fran Fine in the TV series "The Nanny," has been an advocate for HAE awareness. She was diagnosed with the condition in her 30s and has since used her platform to raise awareness about HAE and support research efforts. Drescher has spoken openly about her experiences with HAE, shedding light on the challenges faced by those living with the condition.



Jonny Kennedy



Jonny Kennedy, a British man who gained recognition through the documentary "The Boy Whose Skin Fell Off," also had Hereditary Angioedema. The film chronicled his life and struggles with HAE, providing a glimpse into the daily challenges faced by individuals with this condition. Jonny's story touched the hearts of many and helped raise awareness about HAE globally.



Prince Harry



While not confirmed by the royal family, there have been reports suggesting that Prince Harry may have Hereditary Angioedema. These reports have sparked discussions about the condition and its potential impact on individuals, regardless of their social status. However, it is important to note that these reports remain speculative, and no official confirmation has been made.



Other Celebrities



While not as widely known, there are other celebrities who have privately shared their experiences with Hereditary Angioedema. Due to the personal nature of their condition, they may choose to keep their struggles private. It is crucial to respect their privacy and focus on raising awareness about HAE as a whole, rather than speculating on individual cases.




Hereditary Angioedema is a condition that affects individuals from all walks of life, including celebrities. By sharing their experiences, these well-known figures have played a vital role in raising awareness about HAE and promoting understanding and support for those living with the condition. It is through their advocacy that we can continue to strive for better treatments, improved quality of life, and ultimately, a cure for Hereditary Angioedema.


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Celebrities with Hereditary Angioedema

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World map of Hereditary Angioedema

Find people with Hereditary Angioedema through the map. Connect with them and share experiences. Join the Hereditary Angioedema community.

Stories of Hereditary Angioedema

HEREDITARY ANGIOEDEMA STORIES
Hereditary Angioedema stories
Mine started in 2009 with my first swell, it was my lips and cheek. That is the same time the ucartia started also. It took my Dr. 5 years to find something to help me control and survive my Angioedema. I never knew how bad this could be till I was d...
Hereditary Angioedema stories
Desde niño tuve que soportar los diversos episodios de AEH sin saberlo, pasando de medico en medico con diversidad de diagnosticos y ordenes de cirugias innecesarias, gracias a Dios no acudi a ninguna. Fue hace tres años que optuve el diagnostico r...
Hereditary Angioedema stories
My earliest memory of HAE symptoms was when I was about 6 or 7.  I would occasionally get the abdomen swelling, be sick and sweating all day, then I would finally vomit and then feel better, go to sleep and be better the next morning.  I consider m...
Hereditary Angioedema stories
I was diagnosed accidentally, after seeing a TV show where the host talked about her HAE in 2014. My first attack was at 8, when I was mistakenly hospitalized with appendicitis.  The surgery wasn't done, because I felt better in 3 days.  Next reme...
Hereditary Angioedema stories
i was dx in 2008 with my first fasel swell . im hae type 2 . im co founder of the facebook group ( https://www.facebook.com/groups/156649074393978/ )

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Hereditary Angioedema forum

HEREDITARY ANGIOEDEMA FORUM
Hereditary Angioedema forum
Hi All, Is anyone aware of Cinryze experiencing a shortage supply? If so, why and where is this shortage (US or Europe)?   Thanks!
Hereditary Angioedema forum
Hi All, Is anyone aware of Cinryze experiencing a shortage supply? If so, why and where is this shortage (US or Europe)?   Thanks!
Hereditary Angioedema forum
Hi All, For those of you currently (or in the past) taking Cinryze, Firazyr, or Kalbitor, has Shire always paid for your co-pays through the co-pay assistance program or was there a limit to how much they paid? I've also heard that the case managers...
Hereditary Angioedema forum
Hi Everyone, I am interested in understanding and learning about your perspective on treatments and services available for HAE. What happens when you lose insurance and you need to obtain treatment? During this time, are you given treatment fre...
Hereditary Angioedema forum
Hi Everyone, I'm trying to understand what it is like for people with HAE. Therefore, would you ever switch treatment? Why or why not? What happens if you lose insurance coverage? Are you still recieving treatment? Was there a time where you had to ...

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