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Which are the symptoms of Hereditary Angioedema?

See the worst symptoms of affected by Hereditary Angioedema here

Hereditary Angioedema symptoms
9 answers
With organ swells disabling pain and deforming swelling.
With throat swelling, the fear of dying from loss of airway.
With facial swelling, the deformity and fear that the swelling will move to involve the throat.
With extremity swelling, the deforming, the loss of mobility with foot/ankle/lower leg swelling, loss of use of hands.

Posted Feb 22, 2017 by Teresa Scruton 300
Airway Swelling

Posted Feb 27, 2017 by Zoie 300
severe swelling.

Posted Mar 15, 2017 by Jennifer 1150
Pain , Swells so tight you contemplate cutting to relieve pressure.,

Posted Apr 27, 2017 by Mary Helen 1400
The abdominal pain with abdominal attacks, the rash prior to an attack, the pain of swelling in extremities.

Posted Apr 28, 2017 by Nikki 1150
The unpredictability is one of the worst things to deal with. Sure , there are certain triggers but this disease certainly has a mind of its own

Posted May 23, 2017 by Donna 2250
Swelling of different body parts. Face, hands,feet and abdominal are nose common.

Posted Nov 29, 2017 by [email protected] 1200
Personlly, the most limiting for me are the abdominal attacks. They come on randomly, and I never know how long they will last. Getting rid of the abdominal attacks would definitely be my first hii with. My facial swelling occurs less frequently, however, those are the the scariest/most life threatening of the attacks. To be completely honest, the most difficult part about living with HAE isn’t the attacks themselves. (Don’t get me wrong, those are bad), but if I could truly change one thing, it would be the unpredictability in which the attacks occur. It is impossible to live a normal life when you never know if you’ll end up being sock last minute, and it’s truly a terrible way for someone to live their life.

Posted Jul 10, 2018 by Alex 400
Translated from spanish Improve translation
Swelling of the intestine that gives a lot of pain; hands, feet, lips, vagina, and in the worst cases, inflammation of the glottis.

Posted Feb 23, 2017 by Mary 1161

Hereditary Angioedema symptoms

Hereditary Angioedema life expectancy

What is the life expectancy of someone with Hereditary Angioedema?

7 answers
Is Hereditary Angioedema contagious?

Is Hereditary Angioedema contagious?

4 answers
Celebrities with Hereditary Angioedema

Celebrities with Hereditary Angioedema

Is Hereditary Angioedema hereditary?

Is Hereditary Angioedema hereditary?

4 answers
ICD9 and ICD10 codes of Hereditary Angioedema

ICD10 code of Hereditary Angioedema and ICD9 code

2 answers
Natural treatment of Hereditary Angioedema

Is there any natural treatment for Hereditary Angioedema?

4 answers
Living with Hereditary Angioedema

Living with Hereditary Angioedema. How to live with Hereditary Angioedema?

7 answers
History of Hereditary Angioedema

What is the history of Hereditary Angioedema?

2 answers

World map of Hereditary Angioedema

Find people with Hereditary Angioedema through the map. Connect with them and share experiences. Join the Hereditary Angioedema community.

Stories of Hereditary Angioedema

HEREDITARY ANGIOEDEMA STORIES
Hereditary Angioedema stories
Mine started in 2009 with my first swell, it was my lips and cheek. That is the same time the ucartia started also. It took my Dr. 5 years to find something to help me control and survive my Angioedema. I never knew how bad this could be till I was d...
Hereditary Angioedema stories
Desde niño tuve que soportar los diversos episodios de AEH sin saberlo, pasando de medico en medico con diversidad de diagnosticos y ordenes de cirugias innecesarias, gracias a Dios no acudi a ninguna. Fue hace tres años que optuve el diagnostico r...
Hereditary Angioedema stories
I was diagnosed accidentally, after seeing a TV show where the host talked about her HAE in 2014. My first attack was at 8, when I was mistakenly hospitalized with appendicitis.  The surgery wasn't done, because I felt better in 3 days.  Next reme...
Hereditary Angioedema stories
i was dx in 2008 with my first fasel swell . im hae type 2 . im co founder of the facebook group ( https://www.facebook.com/groups/156649074393978/ )
Hereditary Angioedema stories
My earliest memory of HAE symptoms was when I was about 6 or 7.  I would occasionally get the abdomen swelling, be sick and sweating all day, then I would finally vomit and then feel better, go to sleep and be better the next morning.  I consider m...

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Hereditary Angioedema forum

HEREDITARY ANGIOEDEMA FORUM
Hereditary Angioedema forum
Hi All, Is anyone aware of Cinryze experiencing a shortage supply? If so, why and where is this shortage (US or Europe)?   Thanks!
Hereditary Angioedema forum
Hi All, Is anyone aware of Cinryze experiencing a shortage supply? If so, why and where is this shortage (US or Europe)?   Thanks!
Hereditary Angioedema forum
Hi Everyone, I am interested in understanding and learning about your perspective on treatments and services available for HAE. What happens when you lose insurance and you need to obtain treatment? During this time, are you given treatment fre...
Hereditary Angioedema forum
Hi Everyone, I'm trying to understand what it is like for people with HAE. Therefore, would you ever switch treatment? Why or why not? What happens if you lose insurance coverage? Are you still recieving treatment? Was there a time where you had to ...
Hereditary Angioedema forum
Hi All, For those of you currently (or in the past) taking Cinryze, Firazyr, or Kalbitor, has Shire always paid for your co-pays through the co-pay assistance program or was there a limit to how much they paid? I've also heard that the case managers...

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