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What is the life expectancy of someone with Antiphospholipid / Hughes Syndrome?

Life expectancy of people with Antiphospholipid / Hughes Syndrome and recent progresses and researches in Antiphospholipid / Hughes Syndrome

Antiphospholipid / Hughes Syndrome life expectancy

Antiphospholipid syndrome (APS), also known as Hughes syndrome, is an autoimmune disorder that affects the blood clotting process. It is characterized by the presence of antiphospholipid antibodies in the blood, which can lead to the formation of abnormal blood clots in arteries and veins. These clots can cause a variety of health complications, including deep vein thrombosis, pulmonary embolism, stroke, and pregnancy complications.



When it comes to life expectancy, it is important to note that APS affects individuals differently. The severity of the syndrome and the associated complications can vary greatly from person to person. Some individuals may experience mild symptoms and have a relatively normal life expectancy, while others may have more severe symptoms and face a higher risk of complications.



Factors that can influence life expectancy in individuals with APS include:




  • Presence of other underlying health conditions: APS can coexist with other autoimmune disorders, such as systemic lupus erythematosus (SLE). The presence of additional health conditions can impact life expectancy.

  • Severity of blood clotting episodes: Recurrent or severe blood clotting events can increase the risk of organ damage and potentially impact life expectancy.

  • Effectiveness of treatment: Early diagnosis and appropriate management of APS can help reduce the risk of complications and improve overall outcomes.

  • Individual response to treatment: Each person may respond differently to treatment, and the effectiveness of medications in preventing blood clots can vary.

  • Adherence to treatment plan: Strict adherence to prescribed medications and lifestyle modifications is crucial in managing APS and reducing the risk of complications.



It is important for individuals with APS to work closely with their healthcare team to develop a personalized treatment plan. This typically involves a combination of medications, such as anticoagulants (blood thinners), to prevent blood clots, as well as lifestyle modifications to reduce additional risk factors.



With appropriate management and adherence to treatment, many individuals with APS can lead fulfilling lives and have a normal life expectancy. Regular monitoring, follow-up appointments, and ongoing communication with healthcare providers are essential to ensure optimal management of the syndrome and early detection of any potential complications.



It is important to note that APS is a chronic condition that requires lifelong management. While the syndrome itself does not directly determine life expectancy, the associated complications and individual factors can influence outcomes. Therefore, it is crucial for individuals with APS to prioritize their overall health, follow their treatment plan diligently, and seek prompt medical attention for any concerning symptoms.


Diseasemaps
9 answers
The same as anyone else provided you're well medicated and take care of yourself.

Posted May 16, 2017 by Kate 1000
This is dependant on recurring thrombosis issues but I wouldn't say APS lowers life expectancy, it's the complications that can come about from having APS

Posted May 17, 2017 by Ruth 1321
I know, and am very good friends with a woman in her 80s with Antiphospholipid Antibody Syndrome.

Posted May 18, 2017 by Tauren 2100
Full life expectancy if managed correctly

Posted Oct 30, 2017 by Denise Hampson 2000
No matter how well some people manage APS it does not always stop the clotting. So to say full life expectancy if managed correctly does not seem right to me. I would say it depends on how much damage was done before your diagnosis and on how well your medication controls your APS. I would also say that there are probably no reliable statistics yet as the illness was only discovered in 1983 and treatment has improved since then. Certainly back 16 years ago even a straightforward case was thought to reduce your life expectancy and if you have complications such as other illnesses or stuff like high cholesterol then it was reduced further.

Posted Jan 16, 2018 by Judi 100
If you take care of yourself, i.e. Keep doctors apps., eat a consistent diet, don't avoid vitamin k foods-but eat them regularly and moderately, take your Anticoagulent in the evening, this helps the lab be consistent in determining your INR,
avoid alcohol, don't skip meals, treat your illnesses the lab can adjust your Anticoagulent dosage, you can live a normal lifestyle! LHR

Posted Feb 2, 2018 by Lhrlovesmar 3550
A normal life expectancy unless a clotting incident happens

Posted May 1, 2019 by JL 1700
Life expectancy is generally not shortened by it, it it is managed.

Posted Aug 17, 2022 by gloria_kazan 7450

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Hi my name is Tracy I'm 49 yrs old .. Just over 2 yrs ago I woke at 5am with cramp in my calf wasn't able to weight bare on it so gp told me to rest.. 2 days later it swelled up and was red n painful so husband took me to A&E had blood done came bk p...
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I miscarried 3 times before my doctor decided to see why my babies were dying inside of me. The third pregnancy lasted 20 weeks. It was the baby girl I longed for and I was devastated. I was diagnosed in 1992 but we waited 6 years to try again. I was...
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I've been struggling with a lot of symptoms since the early teens. No doctor believed me until I got my first blood clot at 18. I got diagnosed in march 2016.
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I had my first experience with a blood clot and 1999. It was behind my left me. I've been ended up with multiple pes throughout my lungs. I felt like I was going to die. Fast forward to 2006 and 6 miscarriages later. I found out that I was pregnant. ...
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Had a stroke back in 1997. Had the diagnose in 2003. Thinking back my symptoms started back in the 1980's. Numb left foot causing problems walking or standing for longer periods. It turned out that I had a large cloth in the artery to the leg. Had ...

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