Type B aortic dissection (TBAD) is a life-threatening condition that occurs when a tear in the descending thoracic aortic wall occurs creating a second false channel. Patients with TBAD face dramatically different options for care without strong evidence for the long-term consequences of those options at an individual level. What is absent in the decision-making process in this complex landscape is the patient’s voice. Providing opportunities for patient involvement will help ensure the patient voice is well represented in research related to TBAD.
Learn more about the TBAD Collaborative by viewing the introductory webinar (16 minutes). The Webinar you find here: https://youtu.be/fYAWUZEBli4
You can also read more about the project here: http://becertain.org/partnerships/tbad-collaborative
Be happy (and honored) to help in any way possible with this project. I firmly feel that one of the reasons I survived was to help others specifically with this ailment.
Thanks,
Joel
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