23

Celebrities with Apert Syndrome

What famous people have Apert Syndrome? Find out which celebrities, athletes or public figures have Apert Syndrome.

Celebrities with Apert Syndrome

Apert Syndrome is a rare genetic disorder characterized by abnormal growth of the skull and face. It affects approximately 1 in every 65,000 to 88,000 births. While the condition can present various challenges, it is important to highlight the achievements and resilience of individuals with Apert Syndrome, including some well-known celebrities.



Famous Personalities with Apert Syndrome



1. Alex Minsky


Alex Minsky is a former Marine who gained recognition as a model and motivational speaker. Despite facing the challenges of Apert Syndrome, he has become an inspiration to many. Minsky's determination and positive attitude have helped him overcome obstacles and achieve success in his career.



2. Jono Lancaster


Jono Lancaster is a British activist, author, and television personality. He was born with Apert Syndrome and has dedicated his life to raising awareness and promoting inclusivity for individuals with facial differences. Lancaster's advocacy work has made a significant impact, challenging societal perceptions and promoting acceptance.



3. Megan Bomgaars


Megan Bomgaars is an American actress, public speaker, and entrepreneur. She gained widespread recognition through her appearance on the reality TV show "Born This Way," which follows the lives of individuals with Down Syndrome. While Megan does not have Apert Syndrome, she has been an influential figure in promoting inclusivity and empowering individuals with various disabilities.



4. Joe Coffey


Joe Coffey is a Scottish professional wrestler who has achieved success in the wrestling industry despite being born with Apert Syndrome. Known for his athleticism and charisma, Coffey has become a prominent figure in the wrestling community. His determination and passion for his craft have made him an inspiration to many aspiring wrestlers.



5. Sarah Gordy


Sarah Gordy is a British actress and advocate for individuals with disabilities. While she does not have Apert Syndrome, she has been an influential figure in promoting inclusivity and diversity in the entertainment industry. Gordy has appeared in various TV shows and films, breaking barriers and challenging stereotypes along the way.



Conclusion



These individuals with Apert Syndrome and those advocating for inclusivity have made significant contributions to their respective fields. Their achievements serve as a reminder that with determination, resilience, and support, individuals with Apert Syndrome can overcome challenges and lead fulfilling lives. Their stories inspire us to embrace diversity and promote inclusivity in all aspects of society.


Diseasemaps
1 answer

Celebrities with Apert Syndrome

Apert Syndrome life expectancy

What is the life expectancy of someone with Apert Syndrome?

3 answers
Is Apert Syndrome hereditary?

Is Apert Syndrome hereditary?

2 answers
Is Apert Syndrome contagious?

Is Apert Syndrome contagious?

2 answers
Natural treatment of Apert Syndrome

Is there any natural treatment for Apert Syndrome?

1 answer
ICD9 and ICD10 codes of Apert Syndrome

ICD10 code of Apert Syndrome and ICD9 code

2 answers
Living with Apert Syndrome

Living with Apert Syndrome. How to live with Apert Syndrome?

1 answer
Apert Syndrome diet

Apert Syndrome diet. Is there a diet which improves the quality of life of ...

1 answer
History of Apert Syndrome

What is the history of Apert Syndrome?

1 answer

World map of Apert Syndrome

Find people with Apert Syndrome through the map. Connect with them and share experiences. Join the Apert Syndrome community.

Stories of Apert Syndrome

APERT SYNDROME STORIES
Apert Syndrome stories
Tengo una niña de 3 años que sufre de síndrome de Apert, para realizar las operaciones que necesita mi hija tengo que trabajar en diversas cosas. Soy madre soltera y nivel económico es muy bajo, pero aun así trato de hacer lo mejor posible por e...
Apert Syndrome stories
Hope one day  help aperts mom with their Surgery and support 
Apert Syndrome stories
My daughter born in april 2006 with Apert. No diagnostic antenatal. She got 9 surgery since now:  - craniofacial in 2006 - hands in 2007 (x4) - hands in 2009 (x2) - hands in 2012 - and ORL in 2012 She has 4 fingers to each hands. Surgerys nex...

Tell your story and help others

Tell my story

Apert Syndrome forum

APERT SYNDROME FORUM

Ask a question and get answers from other users.

Ask a question

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map