- Aplastic Anemia
- Interviews
Kaitlyn's interview
How did all start?
I woke up with a rash and very sore bones i was miss diagnosed with the german measles, then found out it was ross river fever. Came in for a blood test to be told i was 6 weeks pregnant *which was a good thing* bloods got sent off to hospital because they were too low
Do you already have a diagnosis? How long did it take you to get it?
Was diagnosed at 18 weeks pregnant had to wait until delivery to get anything done, platelets were 17 at time of delivery. Waiting 2 months going back to every 2 weeks for blood test. Got a second bone marrow biopsy done finally diagnosed with severe apalastic anemia
For what medical specialties have you been treated? What has been the most useful specialty for your?
Waiting for bmt team to contact me about the next steps
What has been the most useful thing for you so far?
My mother
What have been your biggest difficulties?
The lack of oxygen and weakness, having a new baby you are constantly on the go. Sometimes i just need to have a 7 day nap
How has your social and family environment reacted? Have your social or family relationships changed?
No not at all, i don't let people see me at my worst i just sneak off
What things have you stopped doing?
Nothing really
What do you think about the future?
I dont know whats going to happen
So far, which years have been the best years in your life? What have you done during them?
18
What would you like to do if you didn’t have your condition?
Dance
If you had to describe your life in a sentence, what would it be?
Crazy
Finally, what advice would you give to a person in a similar situation?
Smile, laugh, don't let things get you down
