- Arachnoiditis
- Interviews
Molly's interview
How did all start?
Post op March 2019. Had transphenoidal brain surgery for recurring pituitary tumor. Had lumbar drain placed to drain CSF and keep pressure down. Drain in for 7 days. Have had horrible back pain ever since. Arachnoiditis dx’d by MRI.
Do you already have a diagnosis? How long did it take you to get it?
6 weeks
For what medical specialties have you been treated? What has been the most useful specialty for your?
Neurosurgery and Pain Management. Neurosurgeon most helpful
What has been the most useful thing for you so far?
Family support
What have been your biggest difficulties?
Loss of independence
How has your social and family environment reacted? Have your social or family relationships changed?
Yes. I rarely go out anymore, and if I do, I have to take pain meds
What things have you stopped doing?
Travel
What do you think about the future?
lol just be Granny
So far, which years have been the best years in your life? What have you done during them?
2013 till 2019. Moved to Seattle to be with daughter and SIL and help w grandkids
What would you like to do if you didn’t have your condition?
Travel
If you had to describe your life in a sentence, what would it be?
Quiet
Finally, what advice would you give to a person in a similar situation?
Rest
