A Arachnoiditis interview .

Mattie's interview


How did all start?

I'm not sure when it started, but it got worse and constant in 2018.

Do you already have a diagnosis? How long did it take you to get it?

Yes- it took 3.5 years

For what medical specialties have you been treated? What has been the most useful specialty for your?

Neurosurgeon, Neurology, Pain Mgmt.. Neurology and pain mgmt was most helpful

What has been the most useful thing for you so far?

Hope

What have been your biggest difficulties?

Living like it doesn't effect me. Yet being slapped down with the knowledge that it infact does.. everyday. Trying to raise a family while living everyday in pain.

How has your social and family environment reacted? Have your social or family relationships changed?

I don't have much of a social life anymore. My family life has struggled in the last few years. I have a hard time completing the everyday tasks needed as a Mother and Wife.

What things have you stopped doing?

Dancing. I used to love to dance. Jogging.. AND WORKING. I miss being challenged mentally.

What do you think about the future?

I pray someday there is a cure.

So far, which years have been the best years in your life? What have you done during them?

I'm not sure.

What would you like to do if you didn’t have your condition?

Own my own business. Teach and build a team.

If you had to describe your life in a sentence, what would it be?

A hot crazy mess of pushing the boundaries set.

Finally, what advice would you give to a person in a similar situation?

Live day to day, moment to moment. And remember that there is always someone struggling out in this big crazy world just as bad if not worse than yourself.


Nov 15, 2021

By: Mattie

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