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What is the prevalence of Arteriovenous Malformation AVM?

How many people does Arteriovenous Malformation AVM affect? Does it have the same prevalence in men and women? And in the different countries?

Prevalence of Arteriovenous Malformation AVM

Arteriovenous Malformation (AVM) is a relatively rare condition characterized by abnormal connections between arteries and veins in the brain or spinal cord. The prevalence of AVM is estimated to be around 1 in 10,000 individuals, making it a relatively uncommon condition. AVMs can occur at any age, but they are often diagnosed in young adults. While the exact cause of AVMs is unknown, they are believed to develop during fetal development. AVMs can pose serious health risks, including the potential for bleeding or neurological symptoms, and may require medical intervention.



Arteriovenous Malformation (AVM) is a relatively rare vascular disorder characterized by abnormal connections between arteries and veins. These abnormal connections disrupt the normal blood flow and can occur in various parts of the body, including the brain, spinal cord, and other organs.


The prevalence of AVM varies depending on the location. In the general population, the estimated prevalence of brain AVMs is approximately 0.02% to 0.5%. However, these figures may not accurately represent the true prevalence as many AVMs remain undiagnosed or asymptomatic.


Brain AVMs are more commonly found in adults, with a peak incidence between the ages of 20 and 40. They affect both males and females equally. Spinal cord AVMs are rarer, with an estimated prevalence of 1 in 100,000 individuals.


It is important to note that AVMs can be associated with serious health risks, including hemorrhage, seizures, and neurological deficits. Therefore, early detection, proper diagnosis, and appropriate treatment are crucial in managing this condition.


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5 answers
All Ican add to this question is that I have been told they are very rare.

Posted Sep 13, 2017 by Jill 2000
AVM’s occur in less than 2% of the world population. Even fewer of those afflicted will have a rupture.

AVM’s can happen in many areas of the body. The most serious are located in the brain and heart.


Posted Nov 3, 2017 by Rhonda 2150
My own presentation is even rarer, first haemorrhage at 13 months old, mine was sited directly behind my eye, and comprised a tangle of blood vessels, as the circulation was never "normal" a massive growth developed behind my eye covering the entire Orbit. My Photos and scans are published both in book form and on the internet. I have survived surgery but still have two AVM's located in my brain that are deemed inoperable.Because of the rarity I have endured a range of reactions ranging from rudeness and disbelief, to fascination from the medical profession.

Posted Jul 5, 2020 by Mary 2500
AVM's fortunately are very rare but the Butterfly Charity UK is dedicated to AVM sufferers and their familes. Well worth checking out

Posted Nov 3, 2022 by Heather 5020

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Please feel free to follow my journey of traveling back and forth from South Dakota to NYC to have life saving surgeries in order to live a long, healthier life for myself and my family. So far I have had 13 surgeries to remove my avm, which included...
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