Story about Ataxia .

My experience with diagnosis

Jan 25, 2016


I first noted symptoms when I had a few falls. Also at work people noticed my walking differently. The first neurologist ordered an MRI, but never contacted me with the results and I could not contact him. I had my primary obtain the results which he told me showed a problem and told me to see a neurologist. Second opinion seemed unsure and told me that I had a Parkinson's type syndrome. He placed me on carbidopa, but it did not help. After seeming like he was unsure and asking a few times if he was my second opinion I went elsewhere. I went to a movement disorder specialist who tested me for the Huntington gene, there is no known history in my family. The test was negative and he concluded that based on the MRI and symptoms as well as exam, that I have Spinocerebellar Ataxia. After doing some research this seems to fit what I am experiencing.

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