Story about Bardet-Biedl Syndrome .

My BBS Story

Jan 26, 2016


Hi my name is Ryan, im 14 years old and have BBS1.  My main struggles are my weight and my vision, i also have been diagnosed with Autism and MR.  I got my genetic diagnoisis of BBS about 2 years ago.  I have night blindness and have negative 14 in both eyes meaning with corrective lenses im at a 20/80 in each eye. I get picked on at school alot and struggle daily with just fitting in with my peers. I pray one day that i can overcome this weight issue and feel better about my self and physically.  I pray that you all have an awesome day and that your BBS journey is the best that it can be.  Thanks for reading my Story, by the way my mom helped me type this. :)

Know someone who should read this story? Share it

0 comments

Login or register to leave a comment


Bardet-Biedl Syndrome treatments

What are the best treatments for Bardet-Biedl Syndrome?

Bardet-Biedl Syndrome and depression

Bardet-Biedl Syndrome and depression

Natural treatment of Bardet-Biedl Syndrome

Is there any natural treatment for Bardet-Biedl Syndrome?

Celebrities with Bardet-Biedl Syndrome

Celebrities with Bardet-Biedl Syndrome

ICD9 and ICD10 codes of Bardet-Biedl Syndrome

ICD10 code of Bardet-Biedl Syndrome and ICD9 code

Couple and Bardet-Biedl Syndrome

Is it easy to find a partner and/or maintain relationship when you hav...

Bardet-Biedl Syndrome diagnosis

How is Bardet-Biedl Syndrome diagnosed?

What is Bardet-Biedl Syndrome

What is Bardet-Biedl Syndrome