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Can people with Bardet-Biedl Syndrome work? What kind of work can they perform?

See how people with experience in Bardet-Biedl Syndrome give their opinion about whether people with Bardet-Biedl Syndrome can work and what kind of jobs are more appropriated for people with Bardet-Biedl Syndrome

Bardet-Biedl Syndrome jobs

Can people with Bardet-Biedl Syndrome work?


Bardet-Biedl Syndrome (BBS) is a rare genetic disorder that affects multiple systems in the body, including vision, obesity, kidney function, and cognitive abilities. While the severity and symptoms of BBS can vary from person to person, individuals with this syndrome can certainly lead fulfilling lives and contribute to the workforce.


It is important to note that the impact of BBS on an individual's ability to work will depend on the specific symptoms they experience and the support they receive. Some individuals with BBS may face challenges in certain areas, but with appropriate accommodations and understanding from employers, they can still be valuable employees.


What kind of work can they perform?


The type of work individuals with BBS can perform will largely depend on their individual abilities, skills, and interests. It is crucial to focus on their strengths and provide them with opportunities that align with their capabilities. Here are some considerations for potential work options:



  1. Office/Administrative Work: Individuals with BBS who have good organizational skills, attention to detail, and proficiency in using computers can excel in office or administrative roles. They can handle tasks such as data entry, filing, scheduling, and customer service.

  2. Artistic and Creative Fields: Many individuals with BBS possess artistic talents and creativity. They can explore careers in fields such as graphic design, illustration, writing, music, or other creative industries where their unique perspectives can be valued.

  3. Technology and IT: Some individuals with BBS have a keen interest in technology and possess strong problem-solving skills. They can pursue careers in IT support, software testing, web development, or other technology-related roles.

  4. Research and Data Analysis: Individuals with BBS who have a strong analytical mindset and attention to detail can contribute to research projects or data analysis. They can work in fields such as scientific research, market research, or data management.

  5. Customer Service: Individuals with BBS who have good communication skills, empathy, and patience can excel in customer service roles. They can work in call centers, retail, hospitality, or other customer-facing positions.

  6. Advocacy and Support: Some individuals with BBS may choose to work in advocacy or support roles, helping others with disabilities or medical conditions. They can work for non-profit organizations, support groups, or healthcare institutions.


It is important to remember that individuals with BBS, like anyone else, should have the opportunity to pursue their passions and interests. With the right support, accommodations, and understanding from employers, they can make meaningful contributions in various fields.


In conclusion, individuals with Bardet-Biedl Syndrome can indeed work and contribute to the workforce. The specific type of work they can perform will depend on their individual abilities, skills, and interests. By focusing on their strengths and providing appropriate support, individuals with BBS can lead fulfilling professional lives.


Diseasemaps
2 answers
Yes. During their life people will become blind, but most of them can fullfil a job if the disabilities are taken into account.

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Hi my name is Ryan, im 14 years old and have BBS1.  My main struggles are my weight and my vision, i also have been diagnosed with Autism and MR.  I got my genetic diagnoisis of BBS about 2 years ago.  I have night blindness and have negative 14 i...
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Please register your BBS loved one in CRIBBS!   [email protected] We have a Center of Excellence for Treatment of BBS, Located at the Marshfield Clinic, contact the director, Dr. Bob Haws, [email protected] for deta...
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Our oldest son has Bardet-Biedl Syndrome (BBS). We are setting up a family foundation in the Netherlands for BBS. Contact us: [email protected] Check our website: www.bardetbiedlsyndroom.nl
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Hello, my name is Bea. Maried with my great and loving husband, Marco. Together we have  three children. Tamara, Bart and Bas. Bart en Bas are twins. Tamara en Bas have BBS. It was great to see this map with all this people with BBS! I could show Ta...

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