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BARTH SYNDROME FORUM

Barth Syndrome top 25 questions

BARTH SYNDROME TOP 25 QUESTIONS

Discover the top 25 questions that someone asks himself/herself when is diagnosed with Barth Syndrome.

GENERAL FORUM

General forum of Barth Syndrome

RESEARCH / NEWS

The lastest on Barth Syndrome research. Share your finds with others.

TREATMENTS

Drugs, supplements, therapies and treatments based on scientific studies.

NATURAL TREATMENTS

Treatments scientifically not proven.

SYMPTOMS

Barth Syndrome symptoms. Share your symptoms with others.

BARTH SYNDROME RESOURCES

Useful Barth Syndrome resources. Blogs, websites, support groups, apps...

SICK LEAVE / DISABILITIES

Sick leaves and disabilities. Goverment support.

BARTH SYNDROME COMMUNITY

SUPPORT

Get support from others. Ask for help and help others.

INTRODUCE YOURSELF

Introduce yourself. Tell us about you.

STORIES

Tell your story and help others

World map of Barth Syndrome