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Celebrities with Beckwith-Wiedemann Syndrome

What famous people have Beckwith-Wiedemann Syndrome? Find out which celebrities, athletes or public figures have Beckwith-Wiedemann Syndrome.

Celebrities with Beckwith-Wiedemann Syndrome


Beckwith-Wiedemann Syndrome (BWS) is a rare genetic disorder that affects various parts of the body. It is characterized by overgrowth, specific physical features, and an increased risk of certain tumors. While there are no specific celebrities who have publicly disclosed having BWS, there have been individuals in the public eye who have shared their experiences with the condition.



One notable figure who has spoken about their personal connection to BWS is the American actress and singer, Angelica Bridges. Bridges, known for her role in the TV series "Baywatch," has a daughter who was diagnosed with BWS. She has been an advocate for raising awareness about the syndrome and has shared her journey as a parent of a child with BWS.



Another individual who has been open about their experience with BWS is Adam Rainer. Rainer, born in 1899, is historically recognized as the only person to have been both a dwarf and a giant. He had BWS, which contributed to his unique growth pattern. Rainer's story is a testament to the diverse effects BWS can have on an individual's growth and development.



While not a celebrity in the traditional sense, Emma Davie gained attention for her inspiring story. Davie, a young girl from the United Kingdom, was born with BWS and faced numerous challenges due to the condition. Despite these obstacles, she became an ambassador for the charity "Children with Cancer UK" and raised awareness about BWS through her journey.



It is important to note that BWS affects individuals differently, and not all cases receive public attention. Many people with BWS lead fulfilling lives outside of the public eye, contributing to their communities and pursuing their passions. The impact of BWS extends beyond the realm of celebrity, with countless individuals and families navigating the challenges and triumphs associated with the syndrome.


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Celebrities with Beckwith-Wiedemann Syndrome

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World map of Beckwith-Wiedemann Syndrome

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Stories of Beckwith-Wiedemann Syndrome

BECKWITH-WIEDEMANN SYNDROME STORIES
Beckwith-Wiedemann Syndrome stories
I also have fraternal twin sons (b. 2007) who both have BWS. All the of us have had tongue reductions and have gone through tumor screenings. Only one of us currently has issues with hemihypertrophy. Feel free to ask me any questions you might have....
Beckwith-Wiedemann Syndrome stories
My daughter Bailee was born November 2014, she has Beckwith-Weidemann Syndrome, Full left sided Hemihypertrophy, and Congenital Junctional Ectopic Tachycardia. 
Beckwith-Wiedemann Syndrome stories
My daughter was born with BWS hemi in August 1992. 5 1/2 weeks in NICU due to very low blood sugar. Took out 95% of her pancreas and she has had normal levels ever since. Surgeries later for tonsils/adenoids removal, 2 for lazy eye, stopped bone grow...
Beckwith-Wiedemann Syndrome stories
3 year old daughter with BWS and HI
Beckwith-Wiedemann Syndrome stories
Cason was prenatally diagnosed with an omphalocele containing only bowel and an adrenal hematoma at 18 weeks. We had an amniocentesis done at 20 weeks and it showed no abnormalities. He measured very large for gestational age and always had his tongu...

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