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Can people with Beckwith-Wiedemann Syndrome work? What kind of work can they perform?

See how people with experience in Beckwith-Wiedemann Syndrome give their opinion about whether people with Beckwith-Wiedemann Syndrome can work and what kind of jobs are more appropriated for people with Beckwith-Wiedemann Syndrome

Beckwith-Wiedemann Syndrome jobs

Can people with Beckwith-Wiedemann Syndrome work?


Beckwith-Wiedemann Syndrome (BWS) is a rare genetic disorder that affects various parts of the body. It is characterized by overgrowth, specific physical features, and an increased risk of developing certain tumors. While BWS can present challenges in daily life, many individuals with this syndrome are capable of working and leading fulfilling careers.


Employment opportunities for individuals with BWS:


People with BWS have a wide range of abilities and talents, and their potential for employment should be evaluated on an individual basis. The type of work they can perform depends on various factors, including their physical and cognitive abilities, as well as any additional health complications they may have.


1. Office-based jobs:


Many individuals with BWS have average or above-average intelligence and can excel in office-based jobs. These may include administrative roles, data entry, customer service, bookkeeping, or other tasks that require organizational skills and attention to detail. With appropriate accommodations, such as ergonomic workstations or modified schedules, individuals with BWS can thrive in these environments.


2. Creative professions:


BWS does not typically affect artistic or creative abilities. Therefore, individuals with BWS may pursue careers in fields such as graphic design, writing, photography, music, or other creative industries. Their unique perspectives and experiences can contribute to their success in these areas.


3. Entrepreneurship:


Some individuals with BWS may choose to start their own businesses or become self-employed. This allows them to have more control over their work environment and schedule, accommodating any specific needs they may have. Entrepreneurship can be a great option for individuals with BWS who have a passion for a particular field and want to create their own opportunities.


4. Healthcare and support services:


Given their personal experiences with BWS, some individuals may choose to work in healthcare or support services. They can become advocates, counselors, therapists, or healthcare professionals specializing in genetic disorders. Their firsthand knowledge can provide valuable insights and empathy when working with individuals and families affected by similar conditions.


5. Education and research:


Individuals with BWS who have a strong academic background and a passion for learning may pursue careers in education or research. They can become teachers, professors, researchers, or specialists in fields related to genetics, developmental disorders, or rare diseases. Their personal experiences can contribute to their understanding and empathy when working with students or conducting research.


Support and accommodations:


It is important to note that individuals with BWS may require certain accommodations in the workplace to ensure their success and well-being. These accommodations can vary depending on the specific needs of each individual and may include:



  • Flexible work schedules

  • Physical modifications to the workspace

  • Assistive devices or technologies

  • Access to medical support or therapies

  • Additional breaks or rest periods

  • Supportive and inclusive work environments


Conclusion:


People with Beckwith-Wiedemann Syndrome can certainly work and contribute to various industries and professions. With the right support, accommodations, and opportunities, individuals with BWS can lead fulfilling and successful careers. It is essential to recognize their unique abilities, provide inclusive environments, and promote equal employment opportunities for individuals with genetic disorders like BWS.


Diseasemaps
5 answers
BWS affects everyone differently. The average patient csn expect a perfectly normal life, with no complications. This does vary person to person, though .

Posted May 18, 2017 by Megan 1220
Yes, they can do any work that they want. Even if as a child the condition may cause problem, they usually subside when older. The condition doesn't cause any cognitive problems or mental delays. It might cause a speech impediment but that is easely corrected with a speech therapist and/or surgery.

Posted Apr 2, 2019 by Valerie yum 150
Absolutely! My son can do whatever he sets his sights on. He has had most all of the symptoms and has been very successful and very smart

Posted Jan 20, 2020 by DMSmith 1550
Translated from portuguese Improve translation
Generally yes. Any kind of work.

Posted May 22, 2017 by Marcelo 750

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I also have fraternal twin sons (b. 2007) who both have BWS. All the of us have had tongue reductions and have gone through tumor screenings. Only one of us currently has issues with hemihypertrophy. Feel free to ask me any questions you might have....
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My daughter Bailee was born November 2014, she has Beckwith-Weidemann Syndrome, Full left sided Hemihypertrophy, and Congenital Junctional Ectopic Tachycardia. 
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My daughter was born with BWS hemi in August 1992. 5 1/2 weeks in NICU due to very low blood sugar. Took out 95% of her pancreas and she has had normal levels ever since. Surgeries later for tonsils/adenoids removal, 2 for lazy eye, stopped bone grow...
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Cason was prenatally diagnosed with an omphalocele containing only bowel and an adrenal hematoma at 18 weeks. We had an amniocentesis done at 20 weeks and it showed no abnormalities. He measured very large for gestational age and always had his tongu...

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