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Is it easy to find a partner and/or maintain relationship when you have Bladder Exstrophy?

People with experience in Bladder Exstrophy give their opinion on whether it is easy or not to have a partner or to maintain a realationship when you are diagnosed of Bladder Exstrophy. What are the possible difficulties in having a relationship?

Couple and Bladder Exstrophy

Is it easy to find a partner and/or maintain a relationship when you have Bladder Exstrophy?


Bladder exstrophy is a rare congenital condition where the bladder is located outside the body. It can have physical, emotional, and social implications for individuals living with this condition. When it comes to finding a partner and maintaining a relationship, there are several factors to consider.


1. Understanding and Education:


One of the most important aspects of finding a partner and maintaining a relationship when you have bladder exstrophy is ensuring that both you and your partner have a good understanding of the condition. Education about bladder exstrophy can help dispel any misconceptions or fears your partner may have and foster a supportive environment.


2. Communication:


Open and honest communication is crucial in any relationship, and it becomes even more important when dealing with a medical condition like bladder exstrophy. Discussing your needs, concerns, and any limitations you may have can help your partner understand your unique situation and provide the necessary support.


3. Self-Confidence:


Having bladder exstrophy may affect an individual's self-confidence, but it's important to remember that everyone has their own insecurities. Building self-confidence and embracing your uniqueness can make you more attractive to potential partners. Confidence can also help you navigate any challenges that may arise in a relationship.


4. Supportive Partner:


When searching for a partner, it's essential to find someone who is understanding, compassionate, and supportive. A partner who is willing to learn about your condition, attend medical appointments with you, and provide emotional support can make a significant difference in your relationship.


5. Medical Considerations:


Bladder exstrophy may require ongoing medical care, surgeries, or treatments. It's important to find a partner who is willing to be involved in your medical journey and support you through any necessary procedures or treatments. This may involve finding a partner who is understanding of potential physical limitations or challenges.


6. Support Networks:


Building a strong support network of friends, family, or support groups can be beneficial when navigating relationships with bladder exstrophy. Connecting with others who have similar experiences can provide a sense of belonging and understanding, and they may offer valuable advice or insights.


7. Emotional Well-being:


Living with bladder exstrophy can sometimes lead to emotional challenges such as anxiety or depression. Prioritizing your emotional well-being and seeking professional help if needed can contribute to healthier relationships. A partner who is understanding and supportive of your emotional needs can also play a vital role in maintaining a strong relationship.


Conclusion:


While living with bladder exstrophy may present unique challenges, it is still possible to find a partner and maintain a fulfilling relationship. Open communication, understanding, education, and a supportive partner are key factors in building a successful relationship. Remember to prioritize your own well-being and seek support from friends, family, or support groups. With the right mindset and support system, individuals with bladder exstrophy can have meaningful and loving relationships.


Diseasemaps
3 answers
Se non si sta in primis bene con se stessi e con l'accettazione della malattia, è difficile riuscire a "lanciarsi" in una relazione.
quando si sta bene invece, non è difficile trovare un partner: il suggerimento è parlarne liberamente e quanto prima della malattia, per testare il grado di accoglienza da parto dell'altro.
Si scoprirà come tante persone non si fanno fermare da questa malattia.
Una volta instaurato il rapporto, la difficoltà di mantenimento è parimenti a quella di qualsiasi coppia: amare e amarsi chiede fatica, ma non dipende dall'estrofia vescicale.
Sicuramente, in questo tipo di coppia, si suggerisce di condividere la malattia e parlarne apertamente e liberamente, coinvolgendo anche il partner nelle riflessioni e nelle scelte.

Posted Oct 13, 2017 by Giovanni 3050
Translated from spanish Improve translation
I think q the person with extrofia is as normal as anyone, we have q take care a little with the food but we can live a normal life, depending on the intensity of the extrofia, in my case I have a stable partner and I have 2 daughters, with the extrofia can give you modesty scars q you are, when you start in the sex life or in your teenage years, but you've got an active sexual life without any problem

Posted Jul 13, 2017 by Lorena 1850

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